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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Alzheimer’s Disease Research Center – Indiana Alzheimer’s Disease Research Center

https://medicine.iu.edu/research-centers/alzheimers

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information Line: 317-963-5500

ARCH National Respite Network and Resource Center

https://archrespite.org/

ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Phone: 703.256.2084

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

The INconnect Alliance is comprised of fifteen Aging and Disability Resource Centers, serving sixteen areas, throughout Indiana.

Contact Information

800-713-9023

Indiana Association of Area Agencies on Aging (IAAAA)

http://www.iaaaa.org/

Indiana’s Area Agencies on Aging (AAAs) help older adults and people with disabilities of any age and their caregivers navigate Indiana’s long-term services and supports system.

They provide information about options for care, resources and service providers; assess service needs and develop plans of care; make referrals to care managers and link to community services; monitor consumer satisfaction and adjust services to meet changing needs.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within Indiana, call: (800) 986-3505 Outside Indiana, call: (317) 205-9201

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Family and Social Services Administration (FSSA) – Division of Aging

https://www.in.gov/fssa/da/

The Indiana Division of Aging is committed to helping Hoosiers find the information and resources they need.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Division of Aging toll-free number: 888-673-0002

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Healthy Indiana Plan (HIP)

https://www.in.gov/fssa/hip/

HIP is a health insurance for people with limited income and resources who are not Medicaid eligible. It pays for a variety of medical services, hospice, mental health services and care management, depending on eligibility. HIP does have a monthly premium based on a sliding scale determined by participants household income.

Care Recipient Eligibility

Contact Information

(877) GET-HIP9 (1-877-438-4479)

Indiana County-Specific Veterans Service Officer Contacts (VSO)

https://www.in.gov/dva/locate-your-cvso/

The County Veterans Service Offices are a local point of contact for veterans in their county to assist with all veteran issues. They work closely with The Indiana Department of Veteran Affairs, The United States Department of Veterans Affairs, and various Veteran Service Organizations assisting veterans and their family members with benefits they may be eligible for due to their military service.

Indiana Department of Veterans’ Affairs

http://www.in.gov/dva/

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(800) 400-4520

Indiana Long Term Care Insurance Program (ILTCIP)

http://www.in.gov/iltcp/

Partnership between private insurance companies and the Kansas state government that allows people to purchase long term care insurance, through which some of their assets would be protected if they ever needed to apply for Medicaid.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 234-4582

Indiana Medicaid

http://www.in.gov/fssa/2408.htm

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 457-4584 (317) 713-9627

Indiana State Health Insurance Assistance Program (SHIP)

http://www.in.gov/idoi/2495.htm

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 452-4800

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Thrive Alliance

https://thrive-alliance.org/

Thrive Alliance, a member of INconnect Alliance, a statewide network of Indiana’s 16 Aging and Disability Resource Centers (ADRC) – is a one-stop resource center for information about programs and services available to older adults, people with disabilities, or their caregivers.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(866) 644-6407

USAGov – Government Benefits

https://www.usa.gov/benefits

Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

USAGov Contact Center: 1-844-872-4681

Can I Get Help While Living In My Home?

Centers for Independent Living are consumer-controlled, cross-disability, nonresidential, private, nonprofit agencies that are designed and operated within local communities by individuals with disabilities. They promote the independent living philosophy to empower all people with disabilities. Each center is unique but operate under the same five core services. These CIL core services include:

  • Peer counseling;
  • Information and referral;
  • Individual and systems advocacy;
  • Independent living skills training; and
  • Services that facilitate transition from nursing homes and other institutions to the community, provide assistance to those at risk of entering institutions and facilitate transition of youth to postsecondary life.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

See website for local contact information

ILRU Directory of Centers for Independent Living (CILs) and Associations

https://www.ilru.org/cil-directory

The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.

Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.

Check out the website link to access the CIL listing by state – including program names, website and contact information.

The Aged and Disabled Waiver has been split into two new waivers, the Health and Wellness Waiver for individuals 59 and under and the Indiana PathWays for Aging (PathWays) Waiver for individuals 60 and older.

The Health and Wellness Waiver is administered by the Division of Disability and Rehabilitative Services. The PathWays Waiver is administered by the Office of Medicaid Policy and Planning.

Individuals must meet home- and community-based services (HCBS) waiver eligibility and Medicaid eligibility guidelines to be eligible for a Medicaid HCBS waiver.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

(800) 457-4584

Indiana Association for Home and Hospice Care (IAHHC)

http://www.iahhc.org/

Association of in-home care and hospice providers. Its website allows users to locate providers in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(317) 775-6675

Indiana Association of Adult Day Services (IAADS)

http://www.iaads.net/

Its website offers information on adult day services and a Find a Center search tool which allows users to locate providers in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Contact us at (317) 446-6974 or info@iaads.net

Indiana Hospice and Palliative Care Organization, Inc. (IHPCO)

http://www.ihpco.org/

Provides information about hospice and palliative care. Its website allows users to locate hospice and palliative care programs in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(317) 464-5145

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Assisted Living (AL) Waiver

http://www.in.gov/fssa/da/3476.htm

Government program assists low income adults who require nursing level of care delay placement into a nursing facility by helping to pay for support services in an assisted living environment.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 457-4584

Indiana Association for Home and Hospice Care (IAHHC)

http://www.iahhc.org/

Association of in-home care and hospice providers. Its website allows users to locate providers in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(317) 775-6675

Indiana Hospice and Palliative Care Organization, Inc. (IHPCO)

http://www.ihpco.org/

Provides information about hospice and palliative care. Its website allows users to locate hospice and palliative care programs in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(317) 464-5145

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Indiana

https://www.caregiver.org/uploads/2023/08/Indiana-2023-1-1.pdf

235 Montgomery Street | Suite 930 | San Francisco, CA 94104

800.445.8106 toll-free | 415.434.3388 local

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