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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Alzheimer’s Disease Research Center – Johns Hopkins Alzheimer’s Disease Research Center

https://alzresearch.org/

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information line: 410-550-6337

ARCH National Respite Network and Resource Center

https://archrespite.org/

ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Phone: 703.256.2084

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

Maryland Access Point (MAP)

https://marylandaccesspoint.211md.org/

Maryland Access Point (MAP) is Maryland’s No Wrong Door Aging and Disability Resource Center, established as the single entry point for individuals seeking long term support services and a range of community supports. 

Care Recipient Eligibility

Older Adults, individuals with disabilities, and caregivers.

Caregiver Eligibility

Older Adults, individuals with disabilities, and caregivers.

Contact Information

1-844-627-5465

Maryland Area Agencies on Aging (AAAs)

https://aging.maryland.gov/about/area-agencies-aging


Area Agency on Aging or AAA provides a variety of adult services, incorporating assisted living, protective services, and temporary disability programs, as well as health, wellness, and other programs that support community living.

Check out the directory of Maryland’s Area Agencies on Aging for each county district.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Maryland Access Point (MAP): 1-844-627-5465

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Caregiver to caregiver online message board
– Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

To be connected to your local AAA within Maryland, call: (800) 243-3425 Monday-Friday 8:00am-5:00pm For those calling from outside Maryland, see website for local contact information

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Maryland Attendant Care Plus Program

https://mdod.maryland.gov/attendant-care-plus

If you have a long-term or permanent physical disability, the Attendant Care Program helps pay for a personal caregiver. You get to choose and manage your own helpers. The program covers care at home, work, school, or in the community, and it now also helps pay for other extra services or related expenses. This program is for adults aged 18 to 64 with a severe physical or long-term disability.

Care Recipient Eligibility

Anyone, family members must be 18+ (excluding spouses)

Caregiver Eligibility

Anyone, family members must be 18+ (excluding spouses)

Contact Information

Maryland Department of Disabilities: 410-767-3660

Maryland Community First Choice and Caring for Aging Loved Ones

https://mmcp.health.maryland.gov/longtermcare/Pages/Community-First-Choice.aspx

Maryland’s Community First Choice program is an option through Medicaid that allows for certain family members to get hired and compensated as the family caregiver. Services may include assistance with daily living activities such as bathing, eating, dressing, mobility, etc.

Care Recipient Eligibility

Anyone (certain family members may be ineligible)

Caregiver Eligibility

Anyone (certain family members may be ineligible)

Contact Information

Maryland Dept. of Health 410-767-1739

The Community Pathways Waiver (CPW) helps Medicaid participants to live more independently in their homes and communities. The program provides a variety of Meaningful Day, Support, and Residential Services that promote community living, including a self-directed service model and traditional, agenc​y-based service model.

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Maryland Dept. of Health: (410)767-6500 or 1-877-463-3464

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Community Services for Older Adults and People with Disabilities

https://health.maryland.gov/mmcp/longtermcare/pages/Community-First-Choice.aspx

These programs empower older adults and people with disabilities to live in the community. Each program has different requirements based on financial eligibility and level of need.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Within Maryland, call: (800) 637-4113 (Voice/TTY) Outside Maryland, call: (410) 767-3660

Department of Veterans Affairs – Veterans Services Specialist (VSS) Program

https://veterans.maryland.gov/benefits-services/veterans-services-specialist-program

The Veterans Services Specialist Program was established to improve coordination of services for the military connected community in Maryland. Maryland State Government Departments and Agencies have a Veterans Services Specialist (VSS) or “liaison” who can provide general information to state employees who have served in the military or who have family members who have served in the military with information on veteran-related resources. They can also answer general questions citizens may have about these resources.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

Main Phone: 410-260-3838 or toll free: 1-866-793-1577

Department of Veterans and Military Families

https://veterans.maryland.gov/

The Maryland Department of Veterans and Military Families is committed to helping veterans, service members, and military families access the benefits, services, and resources they have earned. The Maryland Department of Veterans and Military Families team responds to questions and concerns, connects constituents with the appropriate programs and agencies, and works to ensure timely assistance and resolution whenever possible.

Contact Information

Main Phone: 410-260-3838 or toll free: 1-866-793-1577

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Maryland Access Point (MAP)

https://marylandaccesspoint.211md.org/

Maryland Access Point (MAP) is Maryland’s No Wrong Door Aging and Disability Resource Center, established as the single entry point for individuals seeking long term support services and a range of community supports. 

Care Recipient Eligibility

Older Adults, individuals with disabilities, and caregivers.

Caregiver Eligibility

Older Adults, individuals with disabilities, and caregivers.

Contact Information

1-844-627-5465

Maryland Department of Aging – Senior Center Services

https://aging.maryland.gov/Pages/senior-centers.aspx

Senior Centers provide a vital link for older adults looking to take charge of their health and remain independent and active in the community. Senior centers offer a range of programs including meal service, arts and crafts, continuing education, health promotion and disease prevention services, and transportation opportunities.

Care Recipient Eligibility

Adults caring for someone who meets care receiver eligibility

Caregiver Eligibility

Adults caring for someone who meets care receiver eligibility

Contact Information

(800) 243-3425 Monday-Friday 8:00am-5:00pm For those calling from outside Maryland, see website for local contact information

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
– Information
– Assistance
– Individual counseling, support groups and caregiver training
– Respite care
– Caregiver to caregiver online message board
– Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

To be connected to your local AAA within Maryland, call: (800) 243-3425 Monday-Friday 8:00am-5:00pm For those calling from outside Maryland, see website for local contact information

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

1-855-642-8572

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Maryland’s SHIP program provides free, unbiased, and expert guidance to navigate Medicare with confidence. Whether you are new to Medicare or looking to change your current coverage, certified counselors provide one-on-one assistance tailored to your needs.

Connect with a Medicare Counselor at a local SHIP office for one-on-one assistance and community education on ways to navigate Medicare, learn about savings programs, and ways to prevent, detect, and report fraud.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Department of Aging: 410-767-1100 or toll-free: 1-800-243-3425

USAGov – Government Benefits

https://www.usa.gov/benefits

Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

USAGov Contact Center: 1-844-872-4681

Can I Get Help While Living In My Home?

Government programs assists individuals with any type of disability remain independent in the community by helping to pay for in-home care. Also, assists residents of nursing homes return to the community, if they are able to do so safely, by managing the transition and providing the appropriate community based services.

*Cost of program is based on a sliding scale determined by participant’s income.
*Program is consumer directed, allowing care receiver to hire, train, supervise, pay, and fire their own attendants.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

(410) 767-6025 TTY: (800) 637-4113

Catholic Charities

https://cc-md.org/

Catholic Charities offers many different services for older adults and adults with disabilities including senior housing, senior care and activities, case management and resources, and other community resources.

Check out the list of programs HERE.

Caregiver Eligibility

___

Contact Information

Get Help: 667-600-2000

Hospice and Palliative Care Network of Maryland

https://www.hnmd.org/page/FindLocalCare

Association of hospice and palliative care providers. Its website provides a listing of hospice and palliative care providers by county allowing users to locate one in their community.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Information Phone: 410-403-8063

ILRU Directory of Centers for Independent Living (CILs) and Associations

https://www.ilru.org/cil-directory

The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.

Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.

Check out the website link to access the CIL listing by state – including program names, website and contact information.

Maryland Association of Adult Day Services (MAADS)

http://www.maads.org/

Association of adult day care providers. Its website provides information on selecting adult day care services and allows users to search for providers by county, city, zip code, and provider name.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 725-1300 Lifespan Network/MAADS: (410) 381-1176 ext. 221

Maryland Community Options Waiver / Home and Community Based Options Waiver (HCBOW)

https://health.maryland.gov/mmcp/waiverprograms/Pages/Home.aspx

The Maryland Home and Community Based Options Waiver (HCBOW), also called the Community Options Waiver, provides Home and Community-Based Services (HCBS) for Maryland residents who are elderly and disabled, require assistance with their Activities of Daily Living (ADLs), and are at risk of nursing home admittance. ADLs include bathing, grooming, dressing, toileting, mobility, transitioning, and eating. Intended to prevent and / or delay the need for nursing home care, the program provides assistance and supports to promote independent living or to supplement care that is already being provided by informal (unpaid) caregivers. Potential benefits include adult day health care, respite care, and personal care assistance and homemaker services in assisted living residences.

Caregiver Eligibility

____

Contact Information

Maryland Department of Health: (410)767-6500 or 1-877-463-3464 Maryland Access Point (MAP) - 1-844-627-5465

The Community Personal Assistance Services Program is a state plan home and community-based services benefit. It helps you get services and support in your home and community instead of in an institution. ​Services may also include:

  • Nurse monitoring
  • Personal assistance services
  • Supports planning

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Community First Choice Program: 410-767-1739.

Maryland Department of Aging – Supporting Older Adults with Resources

https://aging.maryland.gov/programs-and-services/supporting-older-adults-resources

Supporting Older Adults with Resources (SOAR) supports healthy aging, caregiving, housing stability, and social connections. Services may include:

  • Case management
  • Home and community-based supports that may include personal care, homemaker/chore services, meals, transportation, safety related minor home repairs/modifications, adult day care, medical supplies, emergency response systems, and respite care
  • Partial financial support for assisted living monthly fees

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Maryland Department of Aging: 410-767-1100 or toll-free: 1-800-243-3425

Maryland Statewide Independent Living Council

https://marylandsilc.org/

The Maryland Statewide Independent Living Council (SILC) is a governor-appointed advisory council that promotes, supports, and enhances independent living opportunities for Marylanders with disabilities. The Maryland SILC partners with Centers for Independent Living, state agencies, and community advocates to ensure equal opportunities for all. Maryland is served by 7 Centers for Independent Living (CILs). CILs are consumer-controlled, cross-disability nonprofit organizations that empower people with disabilities to live fully independent lives.

Check the Maryland CIL Directory to find a Center for Independent Living in your area.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

Information: (240) 452-1952

Maryland-National Capital Homecare Association (MNCHA)

http://www.mncha.org/

Association of in-home care providers. Its website allows users to search for providers by city or company name.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(301) 920-2069

Programs of All-Inclusive Care for the Elderly (PACE) – Maryland

http://www.hopkinsbayview.org/hopkinselderplus/index.html

PACE programs in Maryland coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
– Adult day health care
– Medical care
– Home health care and personal care
– All necessary prescription drugs
– Social services
– Respite care
– Hospital and nursing home care when necessary

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Hopkins ElderPlus Baltimore (410) 550-7047 (410) 550-8093

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Health Facilities Association of Maryland (HFAM)

http://www.hfam.org/

Association of nursing homes and assisted living facilities. Its website provides a search tool which allows users to locate facilities in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(410) 290-5132

Hospice and Palliative Care Network of Maryland

https://www.hnmd.org/page/FindLocalCare

Association of hospice and palliative care providers. Its website provides a listing of hospice and palliative care providers by county allowing users to locate one in their community.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Information Phone: 410-403-8063

Maryland Department of Aging – Senior Assisted Living Subsidy Program

https://aging.maryland.gov/Pages/Senior-Assisted-Living-Subsidy-Program.aspx

Senior Assisted Living Subsidy program provides access to assisted living facilities that are licensed by the Department of Health. The subsidy supports the cost of services provided in assisted living, including meals, personal care and 24-hour supervision for elderly residents who are frail and unable to live independently.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(410) 767-1100

Maryland Quality Reporting

https://healthcarequality.mhcc.maryland.gov/

Resource for information on the quality and performance of nursing homes, hospitals, hospice, assisted living facilities, and more.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

1 (877) 245-1762

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

Government agency responsible for inspecting and licensing long-term care providers as well as health issues in Maryland. Provides online directories of Assisted living facilities, Adult day care facilities, Specialized Alzheimer’s disease units, Hospice and other facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 262-2232

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Maryland

https://www.caregiver.org/uploads/2023/08/Maryland-2023-1-1.pdf

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