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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?


ASAPs across the Commonwealth are contracted with the Executive Office of Aging & Independence to provide programs and services designed specifically to support adults aged 60 and older, and their caregivers. ASAPs provide the following services:

  • Home care program
  • Senior nutrition program
  • Options Counseling
  • Family caregiver support program
  • Community Transition Liaison Program
  • Supportive and congregate housing
  • Information & Resources (I&R)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

MassOptions: 1-800-243-4636

Alzheimer’s Disease Research Center – Boston University Alzheimer’s Disease Research Center (BU ADRC)

https://www.bu.edu/alzresearch/

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information line: 617-358-4133

Alzheimer’s Disease Research Center – Massachusetts Alzheimer’s Disease Research Center

https://www.madrc.org/

Alzheimer’s Disease Research Centers provide diagnosis, medical research, and support groups.

Find an Alzheimer’s Disease Research Center in your state.

Contact Information

Information line: 617-278-0600

ARCH National Respite Network and Resource Center

https://archrespite.org/

ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Phone: 703.256.2084

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Executive Office of Aging & Independence

https://www.mass.gov/orgs/executive-office-of-aging-independence

The Executive Office of Aging & Independence provides quality aging-related resources, tools, and support through a network of regional non-profit agencies and municipal agencies across the state.

Find your Aging Services Access Point (ASAP) to connect with services that can help you or your loved one age in the community.

Contact Information

MassOptions: 1-800-243-4636 Call Specialist available Monday-Friday, 9:00 AM - 5:00 PM (interpreter services are available in 100+ languages)

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

Family Caregiver Support Program

https://www.mass.gov/family-caregiver-support-program

The Family Caregiver Support Program is a free program can help caregivers care for a family member. A Caregiver Specialist will create a plan and provide tips and support.

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

Contact 1 (800) 243-4636 to speak with a Caregiver Specialist.

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

The Home Care Program provides care management, care coordination, advocacy, education, and in-home and community support services for adults 60+, people with disabilities, and people under age 60 living with Alzheimer’s disease or related dementia.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

MassOptions: 1-800-243-4636

The MassHealth Adult Foster Care (AFC) program helps individuals who have a medical or mental condition with activities of daily living (ADLs), instrumental activities of daily living (IADLs), as well as nursing oversight and care management of the personal care provided by a qualified caregiver.

Care Recipient Eligibility

Family members (excluding spouses or legal guardians) or non-family caregivers able and willing to provide daily personal care as a live-in caregiver.

Caregiver Eligibility

Family members (excluding spouses or legal guardians) or non-family caregivers able and willing to provide daily personal care as a live-in caregiver.

Contact Information

MassHealth Customer Service Center: (800) 841-2900

MassHealth Personal Care Attendant Program

https://www.mass.gov/masshealth-personal-care-attendant-pca-program

MassHealth’s Personal Care Attendant (PCA) program helps people with permanent or chronic disabilities keep their independence, stay in the community, and manage their own personal care by providing funds and other supports for hiring PCAs. The PCA program is self-directed, which means the MassHealth member is responsible for recruiting, hiring, training, scheduling, and managing their PCA.

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

MassHealth Customer Service Center: (800) 841-2900

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Veterans Service Officer helps Massachusetts veterans find resources. VSOs deliver essential services to eligible veterans and their dependents. Some roles of VSOs may include:

  • Outreach services to veterans to educate on benefits and services
  • Offering referrals to programs and services for veterans and their dependents
  • Taking applications for state veterans’ benefits including Chapter 115 financial benefits and the annuity program
  • Helping veterans access employment assistance through career centers and related programs

Contact Information

Executive Office of Veterans Services: 617-210-5480

Massachusetts Veteran’s Services

http://www.mass.gov/veterans/

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans’ benefits to the federal government.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(800) 827-1000 (617) 210-5480

In Massachusetts, Medicaid and the Children’s Health Insurance Program (CHIP) are combined into one program called MassHealth. MassHealth members may be able to get doctors’ visits, prescription drugs, hospital stays, and many other important services.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

MassHealth Customer Service Center: (800) 841-2900

MassOptions is a service of the Executive Office of Aging & Independence connect older adults, people with disabilities, and caregivers in Massachusetts to aging and disability services in Massachusetts.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

MassOptions Call Center: 1-800-243-4636

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) AGE INFO (1-800-243-4636) TTY: (800) 872-0166 Chinese (Chinese Golden Age Center) (617) 357-0226 Haitian Creole (Haitian American Public Health Initiative) (617) 298-8076 Cape Verdean Creole (Immigrant Assistance Center) (508) 996-8113 Khmer (Seton Asian Center) (978) 683-7316 Portuguese (Immigrant Assistance Center) (508) 996-8113 Spanish (Lawrence Council on Aging) (978) 794-5886 Vietnamese (Vietnamese American Civic Association) (617) 288-7344

USAGov – Government Benefits

https://www.usa.gov/benefits

Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

USAGov Contact Center: 1-844-872-4681

Can I Get Help While Living In My Home?


ASAPs across the Commonwealth are contracted with the Executive Office of Aging & Independence to provide programs and services designed specifically to support adults aged 60 and older, and their caregivers. ASAPs provide the following services:

  • Home care program
  • Senior nutrition program
  • Options Counseling
  • Family caregiver support program
  • Community Transition Liaison Program
  • Supportive and congregate housing
  • Information & Resources (I&R)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

MassOptions: 1-800-243-4636

Community Choices Program

http://www.maseniors.org/id66.html

Government program assists adults who are frail and at risk of nursing home placement remain in their own homes by helping to pay for home and community based services including:
– In-home care
– Skilled nursing
– Respite
– Home delivered meals
– Transportation
Also, assists residents of nursing homes return to the community, if they are able to do so safely, by managing the transition and providing the appropriate community based services.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

(800) AGE INFO (1-800-243-4636) TTY: (800) 872-0166

Executive Office of Aging & Independence

https://www.mass.gov/orgs/executive-office-of-aging-independence

The Executive Office of Aging & Independence provides quality aging-related resources, tools, and support through a network of regional non-profit agencies and municipal agencies across the state.

Find your Aging Services Access Point (ASAP) to connect with services that can help you or your loved one age in the community.

Contact Information

MassOptions: 1-800-243-4636 Call Specialist available Monday-Friday, 9:00 AM - 5:00 PM (interpreter services are available in 100+ languages)

Executive Office of Elder Affairs – In-Home Services

https://www.mass.gov/in-home-services

The Home Care Program, including the Frail Elder Waiver, provides care management and in-home support services to help older adults, people with disabilities, and people with Alzheimer’s Disease or related dementia successfully age in place within Massachusetts.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

800 AGE INFO (1-800-243-4636) TTY: (800) 872-0166

Home Care Alliance of Massachusetts (HCAM)

http://www.thinkhomecare.org/

Association of in-home care providers. Its website offers a search tool which allows users to search for in-home care providers by town, region and type of service. Database consists of over 130 providers that are members of HCAM.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(617) 482-8830

Hospice and Palliative Care Federation of Massachusetts

http://www.hospicefed.org/

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs by location, service provider, or services offered. Database consists of providers that are members of the Hospice and Palliative Care Federation.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within Massachusetts, call: (800) 962-2973 Outside Massachusetts, call: (781) 255-7077

ILRU Directory of Centers for Independent Living (CILs) and Associations

https://www.ilru.org/cil-directory

The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.

Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.

Check out the website link to access the CIL listing by state – including program names, website and contact information.

Mass Home Care

http://www.masshomecare.org

A network of 30 statewide non-profit organizations offering in-home care. It’s website includes a search tool which allows consumers to locate programs in their communities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(978) 502-3794

Massachusetts Adult Day Service Association (MADSA)

http://www.madsa.net/

Website provides information about adult day services. Also provides a map of member providers of MADSA which allows consumers to locate adult day services in their community.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 382-7305 Extension 3047 (617) 325-0345

Massachusetts Statewide Independent Living Council (MASILC)

http://www.masilc.org/

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and referral
– Peer counseling
– Care management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 662-7452 (Within Massachusetts) (508) 620-7452 (Outside Massachusetts)

Veterans Service Officer helps Massachusetts veterans find resources. VSOs deliver essential services to eligible veterans and their dependents. Some roles of VSOs may include:

  • Outreach services to veterans to educate on benefits and services
  • Offering referrals to programs and services for veterans and their dependents
  • Taking applications for state veterans’ benefits including Chapter 115 financial benefits and the annuity program
  • Helping veterans access employment assistance through career centers and related programs

Contact Information

Executive Office of Veterans Services: 617-210-5480

Statewide program assists people with disabilities obtain assistive devices and remain independent in their community. Services include:
– Information and referral
– Assistive technology training
– Assistance locating funds for the purchase of Assistive Technology

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Within Massachusetts, call: (866) 682-9955 Outside Massachusetts, call: (617) 204-3851

Programs of All-Inclusive Care for the Elderly (PACE) – Massachusetts

http://www.summiteldercare.org

Six PACE programs in Massachusetts coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
– Adult day health care
– Medical care
– Home health care and personal care
– All necessary prescription drugs
– Social services
– Respite
– Hospital and nursing home care when necessary

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Summit ElderCare Worcester (800) 698-7566 TTY: (800) 899-4196 Elder Service Plan of East Boston Neighborhood Health Center East Boston (617) 569-5800 Elder Service Plan of the North Shore Lynn (781) 715-6608 Upham's Elder Service Plan Dorchester (617) 825-9206 Elder Service Plan of Harbor Health Services, Inc. Dorchester (617) 533-2400 Elder Service Plan of the Cambridge Health Alliance Cambridge (617) 665-2300

Rewarding Work Resources, INC – Massachusetts

http://www.rewardingwork.org/

adults and people with disabilities hire personal care assistants (PCAs) and direct care workers. Also provides a free resource for workers who are interested to find jobs as PCAs. Rewarding Work presently operates in Connecticut, Massachusetts, Rhode Island, New Jersey and Vermont.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 211 9675

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Division of Health Care Quality

http://www.mass.gov/dph/dhcq

Government agency responsible for health issues in the state of Massachusetts including inspecting and licensing long-term care providers. Its website provides an online directory of nursing homes in Massachusetts and includes tips on how to choose a nursing home.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(866) 627-7968 (617) 753-8000

Hospice and Palliative Care Federation of Massachusetts

http://www.hospicefed.org/

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs by location, service provider, or services offered. Database consists of providers that are members of the Hospice and Palliative Care Federation.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within Massachusetts, call: (800) 962-2973 Outside Massachusetts, call: (781) 255-7077

Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(617) 727-7750 (800) 243-4636 (nationwide) (800) 872-0166 (TTY)

Massachusettes Senior Care Association

http://www.maseniorcare.org/

Long term care provider organization representing skilled nursing facilities, assisted living residences and continuing care retirement communities in Massachusetts. Its website offers a search tool which allows the user to search for nursing homes and assisted living facilities by county, zip code and provider type. Database consists of providers that are members of MECF.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) CARE-FOR (1-800-227 3367) (617) 558-0202

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Massachusetts

https://www.caregiver.org/uploads/2023/08/Massachusetts-2023-1-1.pdf

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