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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

Division of Aging Services – Office of Area Agencies on Aging Administration

https://nj.gov/humanservices/doas/services/a-k/agencies-on-aging/

The office assists the 21 county Area Agencies on Aging in developing comprehensive, coordinated service systems for adults aged 60 and over. Services funded and available through the Area Agencies on Aging may include information and assistance, outreach, transportation, case management, homemaker, visiting nurse, respite, telephone reassurance, hospice, escorted transportation, adult day care, legal assistance, education, caregiver support, etc. Meals provided in a group setting and delivered to the home are also available through the Area Agencies on Aging.

Care Recipient Eligibility

Older adults and family caregivers.

Caregiver Eligibility

Older adults and family caregivers.

Contact Information

Access to aging services in your county: 1-877-222-3737

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

New Jersey Disability Information Hub – Older Adults

https://www.nj.gov/disabilities/resources-by-life-stages/older-adults/

The New Jersey Disability Information Hub offers a variety of programs and resources for older adults, and information about supports for older adults, including: Medical coverage and pharmaceutical support programs such as PAAD/Senior Gold, MLTSS, and Medicare Savings Programs, Personal Care Assistance Programs, Area Agencies on Aging and the Aging and Disability Resource Connection, Congregate Meal Programs, Adult Protective Services.

Care Recipient Eligibility

Seniors, adults, and their caregivers.

Caregiver Eligibility

Seniors, adults, and their caregivers.

Contact Information

1-888-285-3036

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Jersey Assistance for Community Caregiving (JACC)

https://www.nj.gov/humanservices/doas/services/a-k/jacc/

JACC is a State-funded program that provides a broad array of in-home and community-based services to individuals age 60 and older who meet clinical eligibility for nursing home level of care and who desire to remain in their homes within the community. Individuals who meet clinical eligibility for nursing home level of care are individuals who require assistance with a minimum of three activities of daily living (ADL) such as bathing, toileting, dressing, transfers and locomotion.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Aging and Disability Resource Connection (ADRC) toll free: 1-877-222-3737 

Information about eligibility and requirements for home and community-based services by state.

New Jersey’s Personal Preference Program (PPP) is a Medicaid program that provides financial assistance to assist seniors and people with disabilities. The program allows for the care recipient to choose the services they want, hire their own personal care provider (including relatives and friends), create their own schedule, and maintain control over their care plan. PPP may also covers costs for medical equipment and home modifications. 

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Division of Disability Services: 888-285-3036

Government Benefits and General Information

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – New Jersey

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Caregivers of New Jersey is dedicated to supporting people with disabilities, older adults, and their family caregivers across New Jersey by providing personalized support coordination services and caregiver resources to help individuals make informed choices, create person-centered life plans, and access programs that promote independence and community inclusion.

As New Jersey’s central point of contact for caregiving issues, Caregivers of New Jersey connects families with information, advocacy, and a network of local caregiving coalitions.

Caregiver Eligibility

Contact Information

(800) 372-6510

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Health Care Access Project (HCAP)

http://www.lsnj.org/PDFs/HCAPbrochure.pdf

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance, Medicaid and other health care issues. Community education and individual counseling are available.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Toll Free Statewide: (888) 576-5529 Outside NJ: (732) 572-9100

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

Assists eligible persons with excessive medical bills to receive medical care and services.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 792-9745

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

New Jersey County-Specific Veterans Service Officer Contacts (VSO)

https://www.nj.gov/dva/veterans/services/vso/

The New Jersey Department of Veterans Affairs (DVA) operates Veterans Service Offices in each of the state’s twenty-one counties. These offices are led by trained and accredited Veterans Service Officers (VSOs) and serve as points of entry for Veterans and their dependents to access local, state, and federal benefits, programs, and services.

Contact Information

DVA Veterans Service Offices Toll Free Number: 844-671-1019

New Jersey Department of Veterans Affairs (VA)

https://www.nj.gov/dva/

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

Main Number 609-530-6892 Benefits Hotline 888-8NJ-VETS (888-865-8387)

New Jersey Disability Information Hub – Older Adults

https://www.nj.gov/disabilities/resources-by-life-stages/older-adults/

The New Jersey Disability Information Hub offers a variety of programs and resources for older adults, and information about supports for older adults, including: Medical coverage and pharmaceutical support programs such as PAAD/Senior Gold, MLTSS, and Medicare Savings Programs, Personal Care Assistance Programs, Area Agencies on Aging and the Aging and Disability Resource Connection, Congregate Meal Programs, Adult Protective Services.

Care Recipient Eligibility

Seniors, adults, and their caregivers.

Caregiver Eligibility

Seniors, adults, and their caregivers.

Contact Information

1-888-285-3036

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 356-1561

New Jersey State Health Insurance Assistance Program (SHIP)

https://www.nj.gov/humanservices/doas/services/q-z/ship/

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

SHIP Information Center: 1-800-792-8820

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

Specified Low-Income Medicare Beneficiary (SLMB)

https://www.nj.gov/humanservices/doas/services/l-p/msp/

This program helps pay for parts of Medicare for qualifying Medicare beneficiaries. You can apply through our NJSave online or paper application.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Hotline: 1-800-792-9745

Can I Get Help While Living In My Home?

Alzheimer’s Adult Day Services Program

https://www.nj.gov/humanservices/doas/services/a-k/aads/

The Alzheimer’s Adult Day Services Program subsidizes adult day care services for persons with Alzheimer’s disease or a related dementia.

Caregiver Eligibility

___

Contact Information

(609) 943-3475 (609) 943-4985 Toll Free: (800) 792-8820 (877) 222-3737

Community Choice helps nursing facility residents and hospital patients explore various community-based alternatives by providing information about in-home services, housing alternatives, and community programs. The program encourages participants to make well-informed decisions about what is best for their long-term care.

Community Choice assigns counselors – registered nurses and social workers – to meet with nursing home residents and hospital patients and their families.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

Community Choice counselor: 609-588-6675 or 1-877-222-3737

Division of Aging Services – Office of Area Agencies on Aging Administration

https://nj.gov/humanservices/doas/services/a-k/agencies-on-aging/

The office assists the 21 county Area Agencies on Aging in developing comprehensive, coordinated service systems for adults aged 60 and over. Services funded and available through the Area Agencies on Aging may include information and assistance, outreach, transportation, case management, homemaker, visiting nurse, respite, telephone reassurance, hospice, escorted transportation, adult day care, legal assistance, education, caregiver support, etc. Meals provided in a group setting and delivered to the home are also available through the Area Agencies on Aging.

Care Recipient Eligibility

Older adults and family caregivers.

Caregiver Eligibility

Older adults and family caregivers.

Contact Information

Access to aging services in your county: 1-877-222-3737

Jersey Assistance for Community Caregiving (JACC)

http://www.state.nj.us/humanservices/doas/services/jacc/

Offers a variety of in-home services and supports to enable individuals at risk of placement in a nursing facility to remain in the community and delay /prevent institutionalization.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

1-800-792-8820

Managed Long-Term Services and Supports (MLTSS)

https://www.nj.gov/humanservices/dmahs/home/mltss.html

Managed Long Term Services and Supports (MLTSS) refers to the delivery of long-term services and supports through New Jersey Medicaid’s NJ FamilyCare managed care program. MLTSS is designed to expand home and community-based services, promote community inclusion and ensure quality and efficiency.

MLTSS provides comprehensive services and supports, whether at home, in an assisted living facility, in community residential services, or in a nursing home.

Caregiver Eligibility

___

Contact Information

(877) 222-3737

New Jersey County-Specific Veterans Service Officer Contacts (VSO)

https://www.nj.gov/dva/veterans/services/vso/

The New Jersey Department of Veterans Affairs (DVA) operates Veterans Service Offices in each of the state’s twenty-one counties. These offices are led by trained and accredited Veterans Service Officers (VSOs) and serve as points of entry for Veterans and their dependents to access local, state, and federal benefits, programs, and services.

Contact Information

DVA Veterans Service Offices Toll Free Number: 844-671-1019

New Jersey Division of Vocational Rehabilitation Services (DVRS)

http://jobs4jersey.com/jobs4jersey/jobseekers/disable/index.html

This state department helps residents of New Jersey with disabilities to obtain and retain employment. It provides information and referral services for independent living.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(609) 659-9045 TTY: (609) 292-2919

New Jersey Statewide Independent Living Council

http://www.njsilc.org/

A network of nonprofit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and referral service
– Independent living skills training
– Peer counseling
– Individual and systems change advocacy
– Life transition service

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

To find your local Independent Living Center, call: (609) 581-4500 or (609) 581-4555 (TTY)

Personal Assistance Services Program (PASP)

https://www.nj.gov/humanservices/dds/programs/personalassistance/

The PASP is a personal care assistance program that provides up to 40 hours per week of routine, non-medical personal care assistance to adults with permanent physical disabilities who are 18 years of age or older, who are employed, preparing for employment, attending school or involved in community volunteer work and who are able to self-direct their own services.

Personal assistants help with personal care tasks including, but not limited to: bathing, dressing, eating, grooming, preparing meals, shopping, light housekeeping, driving or using public transportation.

To learn more about PASP or applying for the program, contact the County Coordinator serving your county.

Caregiver Eligibility

___

Contact Information

(888) 285-3036

Rewarding Work Resources, INC – New Jersey

http://www.rewardingwork.org/

Rewarding Work, a nonprofit company, provides a web-based resource to help older adults and people with disabilities hire personal care assistants (PCAs) and direct care workers. Also provides a free resource for workers who are interested to find jobs as PCAs. Rewarding Work presently operates in Connecticut, Massachusetts, Rhode Island, New Jersey and Vermont.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 211 9675

The New Jersey Statewide Respite Care Program gives a short-term or periodic break to family (or other caregivers) from the demands of daily care for functionally impaired persons, including the frail elderly.

Caregiver Eligibility

Anyone caring for someone who meets recipient eligibility criteria

Contact Information

Toll Free Nationwide: (877) 222-3737

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Community Choice helps nursing facility residents and hospital patients explore various community-based alternatives by providing information about in-home services, housing alternatives, and community programs. The program encourages participants to make well-informed decisions about what is best for their long-term care.

Community Choice assigns counselors – registered nurses and social workers – to meet with nursing home residents and hospital patients and their families.

Care Recipient Eligibility

____

Caregiver Eligibility

____

Contact Information

Community Choice counselor: 609-588-6675 or 1-877-222-3737

Health Care Association of New Jersey (HCANJ)

https://www.hcanj.org/facility-finder/

Provides online directories of:
– Nursing facilities
– Assisted living facilities
– Resident care facilities

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(609) 890-8700

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

New Jersey Department of Health/Long-Term Care Facilities

https://healthapps.nj.gov/facilities/fssearch.aspx

Provides online directories of long term care facilities, including nursing homes. Also provides information on licensure for hospitals and other care facilities licensed by the Department of Health and Senior Services.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(609) 633-8980 or Toll Free Nationwide: (877) 222-3737

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – New Jersey

https://www.caregiver.org/uploads/2023/08/New-Jersey-2023-1-1.pdf

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