Family Caregiver Services by State
I am New to Caregiving Where Do I Start?
ARCH National Respite Network
Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Association on Aging in New York
Offices for the Aging (also known as Area Agencies on Aging or AAAs) offer aging services, including:
– Information and Assistance
– Care Management
– Nutrition Services (i.e., Meals on Wheels)
– Legal Assistance
– Services for family caregivers through the Family Caregiver Support Program (FCSP)
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Eldercare Locator
The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Family Caregiver Alliance (FCA)
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.
CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.
www.caregiver.org/connecting-caregivers/fca-carenav/
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York Family Caregiver Support Program (NFCSP)
The National Family Caregiver Support Program (NFCSP) provides supports that assist family and informal caregivers to care for their loved ones at home for as long as possible. Assistance provided includes case management, counseling, support groups & training, and respite & supplemental services.
The National Family Caregiver Support Program is administered by the NYSOFA through the Area Agencies on Aging (AAAs). View more Caregiver Resources when caring for a loved one.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
NY Connects provides one stop access to free, objective, comprehensive information and assistance on long term services and supports for people of all ages or with any type of disability.
Contact Information
Related Resources
Can I Get Help to Pay for Caregiving?
Consumer Directed Personal Assistance Association of New York State (CDPAANYS)
The Consumer Directed Personal Assistance Association of New York State supports consumer directed personal assistance providers and recipients in all counties of New York State, offering supportive services, including, but not limited to: advocacy, systems change, and the promotion of consumer control and self determination.
Consumer Directed Personal Assistance allows Medicaid recipients in need of personal care, home health and nursing services to recruit, hire, train, supervise and terminate their own personal assistants.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Expanded In-home Services for the Elderly (EISEP)
The Expanded In-home Services for the Elderly Program (EISEP) provides frail older adults with access to a well-planned, coordinated package of in-home and other supportive services designed to support and supplement informal care.
In 2011, EISEP regulations were amended to provide a consumer-directed option. Consumer direction under EISEP is a person-centered planning approach that empowers an older adult by enabling him/her (or his/her representative) to hire, train, and oversee their in-home services worker.
Care Recipient Eligibility
Anyone
Caregiver Eligibility
Anyone
Contact Information
Market Rate for Long Term Care Services
The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
Related Resources
Government Benefits and General Information
ACCESS NYC
ACCESS NYC is a free service that helps you find out if you may qualify for over 30 City, State and Federal benefit programs such as Medicaid, Food Stamps or help with utility bills. It is mobile friendly, available in seven languages, including English, Spanish, Chinese, Russian, Korean, Arabic, and Haitian Creole, and is formatted for text-to-speech screen readers.
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Use ACCESS NYC to find out more about different health and human services benefits that may be right for you or a loved one. ACCESS NYC contains all the information you will need to apply for benefits such as how to apply, where to go, and what documents to bring.
Care Recipient Eligibility
Caregiver Eligibility
Benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
Care Recipient Eligibility
N/A
Caregiver Eligibility
N/A
Contact Information
Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.
For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.
Benefits.gov – New York
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
Care Recipient Eligibility
N/A
Caregiver Eligibility
N/A
Contact Information
Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.
For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.
Consumer Directed Personal Assistance Association of New York State (CDPAANYS)
The Consumer Directed Personal Assistance Association of New York State supports consumer directed personal assistance providers and recipients in all counties of New York State, offering supportive services, including, but not limited to: advocacy, systems change, and the promotion of consumer control and self determination.
Consumer Directed Personal Assistance allows Medicaid recipients in need of personal care, home health and nursing services to recruit, hire, train, supervise and terminate their own personal assistants.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Expanded In-home Services for the Elderly (EISEP)
The Expanded In-home Services for the Elderly Program (EISEP) provides frail older adults with access to a well-planned, coordinated package of in-home and other supportive services designed to support and supplement informal care.
In 2011, EISEP regulations were amended to provide a consumer-directed option. Consumer direction under EISEP is a person-centered planning approach that empowers an older adult by enabling him/her (or his/her representative) to hire, train, and oversee their in-home services worker.
Care Recipient Eligibility
Anyone
Caregiver Eligibility
Anyone
Contact Information
Medicaid Profiles by State
Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.
Contact Information
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
National Resource Center on Native American Aging (NRCNAA)
The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.
Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.
Contact Information
New York County-Specific Veterans Service Officer Contacts (VSO)
Contact Information
(888) 838-7697
New York Health Insurance Counseling and Advocacy Program (HICAP)
Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York Medicaid
Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York Personal Care Services Program
Government program available to people with disabilities and frail older adults who need some assistance with the activities of everyday life. Offers in-home care services such as meal preparation and bathing.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Caregiving and Respite Coalition (NYSCRC)
Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.
Caregiver Eligibility
Contact Information
New York State Division of Veterans’ Affairs (VA)
Provides aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Partnership for Long-Term Care
Partnership between private insurance companies and Medicaid, provides long term care insurance as part of Medicaid coverage.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
PlanAheadNY Long Term Care Insurance Helpline
Government program offers education on long-term care and counseling on long-term care insurance options and providers.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
SAMHSA’s National Helpline
The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.
Also visit the online treatment locator to find help near you.
Contact Information
Senior Citizen Helpline
Offers information and referrals for aging and caregiver services.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Where Do I Go for Legal Help And/Or Dependent Person Mistreatment?
Buffalo Neighborhood Legal Services
Nonprofit agency serving all of western New York State. Provides free legal services to low income individuals with disabilities.
Contact Information
(716) 847-0650
Center for Elder Law & Justice
Provides direct legal services of individuals living in western New York State. Primarily clients are individuals aged 60 and over and low income individuals.
Contact Information
(716) 853-3087
Empire Justice Center
Issue areas include: Childcare, civil rights, public benefits, domestic violence, housing, immigrant rights, and disability benefits.
Contact Information
(518) 462-6831
Legal Aid Society of Mid-New York
Nonprofit law firm providing free legal information, advice, and representation to low income individuals. Serves 13 counties in mid-New York State.
Contact Information
(607) 231-5900
Legal Aid Society of New York
Provides criminal and civil legal services. Special elder law division through the Brooklyn Office for the Aging provides legal services for housing, healthcare, government benefits, disability benefits, and family law.
Contact Information
(212) 577-3300
Legal Assistance of Western New York
Nonprofit law firm providing free legal aid to people with civil legal problems in western New York.
Contact Information
(315) 828-0758
Legal Services of Hudson Valley
Civil legal representation for low income residents of Hudson Valley. Special division for elder law services.
Contact Information
(877) 574-8529
Nassau and Suffolk Law Services
Provides legal assistance to low income residents of Nassau and Suffolk Counties.
Contact Information
New York Law Help
New York Legal Assistance Group
General Legal Services Unit provides direct civil legal services in a wide array of areas. Special sub-projects are tailored to help seniors, disabled, low income consumers, and others. Areas of representation include: Civil rights, elder law, consumer protection, employment law, housing, public benefits.
Contact Information
(212) 613-5000
New York Long-Term Care Ombudsman Program
Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York StateWide Senior Action Council
Operates a helpline to assist consumers with questions and complaints about hospital facilities, patient rights, and other health issues including prescription medication benefits.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Protective Services for Adults and Elder Abuse Hotline
Adult Protective Services assist vulnerable and elder adults to stop and prevent abuse, neglect, or exploitation.
Anyone can make a report about suspected abuse to the Hotline.
*Assistance available in Spanish, Arabic, Russian, and Chinese.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Queens Legal Services/Legal Services of NYC
Provides free high quality legal aid in civil matters to low income residents of New York City. Core practice areas are: Family, housing, benefits, consumer, and education law. Special projects include senior citizen focus.
Contact Information
(646) 442-3600
South Brooklyn Legal Services
Legal services for low income residents of Brooklyn in a broad range of topics including: Family and child law, consumer law, government benefits, housing, pension benefits, SSI and disability rights, employment, and special education.
Contact Information
(718) 237-5500
Western New York Law Center
Nonprofit legal aid center servicing low income residents of western New York in civil legal matters.
Contact Information
(716) 855-0203
Related Resources
Can I Get Help While Living In My Home?
Adult Day Health Care Council
New York’s Adult Day Health Care Council serves its 133 programs throughout NYS and its caregivers and registrants. It is a critical resource for caregivers who want their loved ones to remain in the home.
Contact Information
518-867-8383, ext. 141
Home Care Association of New York State (HCA)
Provides information on in-home care and an online search tool for consumers to locate service providers which are HCA members.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Hospice and Palliative Care Association of New York State
Provides information about end-of-life care. Its online search tool allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
LeadingAge New York (formerly New York Association of Homes and Services for the Aging – NYAHSA)
NYAHSA’s website offers a search tool which allows the user to search for long term care providers and services by county, zip code and provider’s name. Long term care services include:
– In-home care
– Nursing homes
– Assisted living facilities
– Adult day facilities
– Senior housing
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Long Term Home Health Care Program
Government program assists individuals with disabilities and older adults, medically eligible for placement into a nursing home, remain in their own homes by providing a coordinated plan for medical, nursing and rehabilitative care. Services include:
– Medical services
– Care management by registered nurse
– Home delivered or congregate meals
– Home modifications
– Respiratory therapy
– Respite
– Adult day care
– Transportation
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York County-Specific Veterans Service Officer Contacts (VSO)
Contact Information
(888) 838-7697
New York Personal Care Services Program
Government program available to people with disabilities and frail older adults who need some assistance with the activities of everyday life. Offers in-home care services such as meal preparation and bathing.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Association of Health Care Providers, Inc. (HCP)
HCP represents home and community-based care providers across New York State through advocacy, information and education. HCP’s Provider members include Licensed Home Care Service Agencies (LHCSAs), Certified Home Health Agencies (CHHAs), Hospices, and health related organizations (HROs), as well as Associate members that provide products and services specifically developed for home care providers.
Provides information on home care programs and services, and an online search tool for consumers to locate home care service providers which are HCP members.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Department of Health
The New York State Department of Health is responsible for inspecting and licensing of health care facilities and long-term care providers, such as adult care facilities/assisted living, home care and hospice, nursing homes and other health care facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Independent Living Council, Inc. (NYSILC)
A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and Referral
– Peer counseling
– Care Management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)
Assisted Living Program (ALP)
Government program helps individuals in need of nursing level of care delay placement in a nursing facility by helping to pay for support services in an assisted living environment. Services include:
– Personal care
– Room and board
– Physical therapy
– Medical supplies and equipment
– Adult day care
– Care management by registered nurse
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Hospice and Palliative Care Association of New York State
Provides information about end-of-life care. Its online search tool allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
LeadingAge New York (formerly New York Association of Homes and Services for the Aging – NYAHSA)
NYAHSA’s website offers a search tool which allows the user to search for long term care providers and services by county, zip code and provider’s name. Long term care services include:
– In-home care
– Nursing homes
– Assisted living facilities
– Adult day facilities
– Senior housing
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Department of Health
The New York State Department of Health is responsible for inspecting and licensing of health care facilities and long-term care providers, such as adult care facilities/assisted living, home care and hospice, nursing homes and other health care facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Health Facilities Association (NYSHFA)
Offers online information on nursing homes and hospice care. Online search tool allows the user to locate service providers, members of NYSHFA.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
New York State Partnership for Long-Term Care
Partnership between private insurance companies and Medicaid, provides long term care insurance as part of Medicaid coverage.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
PlanAheadNY Long Term Care Insurance Helpline
Government program offers education on long-term care and counseling on long-term care insurance options and providers.