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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

Aging & Disability Resource Center (ADRC) Network

https://hhs.iowa.gov/family-community/aging-disability-resource-center

The ADRC network’s purpose is to help older adults and people with disabilities in Iowa to find services they need. Aging and Disability Resource Center (ADRC) helps people find services and support in their community. ADRCs help people stay healthy and independent by providing information and connecting people to available resources so they can make informed decisions about their lives.

In Iowa, ADRCs include Area Agencies on Aging (AAAs) and Disability Access Points (DAPs).

Care Recipient Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Caregiver Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Contact Information

1-800-779-2001

ARCH National Respite Network and Resource Center

https://archrespite.org/

ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Phone: 703.256.2084

Best Programs for Caregiving

https://bpc.caregiver.org/

Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.

Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.

A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.

Caregiver resources include Information and Assistance, Family Caregiver Counseling, Respite Care Services, Family Caregiver Support Groups.

Connect with your Area Agency on Aging to learn more about these programs.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within Iowa, call: (866) 468-7887

Eldercare Locator

https://eldercare.acl.gov/home

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

www.caregiver.org/connecting-caregivers/fca-carenav/

List of Area Agencies on Aging (AAA) – six Area Agencies on Aging in Iowa cover all 99 counties, and other resources for people 60 years or older.

Find your Iowa Area Agencies on Aging by selecting your County or from the Map.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

1-800-972-2017 For telephone accessibility assistance if you are deaf, hard-of-hearing, deaf-blind, or have difficulty speaking call Relay Iowa TTY at 1-800-735-2942.

Can I Get Help to Pay for Caregiving?

CareScout (cost of long-term care near you)

https://www.carescout.com/cost-of-care

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

In Iowa, there are seven programs called Home-and Community-Based Services (HCBS) Waivers. These waivers help people stay in their own homes or communities instead of going to a medical institution.

These programs also provide funding and personalized support for individuals who qualify, allowing them to receive the care they need while remaining in a familiar environment.

To learn more about the HCBS Waiver Program, please read the HCBS Waiver Program brochure.

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Iowa Medicaid Member Services: 1-800-338-8366

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

Caregiver resources include Information and Assistance, Family Caregiver Counseling, Respite Care Services, Family Caregiver Support Groups.

Connect with your Area Agency on Aging to learn more about these programs.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

To be connected to your local AAA within Iowa, call: (866) 468-7887

Family Resource Center

http://www.carrollfrc.org/

A consumer-driven program to assist the disabled through Medicaid Waiver services to live as independently as possible in their home communities.

Care Recipient Eligibility

Anyone caring for someone who meets recipient eligibility.

Caregiver Eligibility

Anyone caring for someone who meets recipient eligibility.

Contact Information

(800) 999-5101 (712) 792-6440

Guiding an Improved Dementia Experience (GUIDE) Model

https://www.cms.gov/priorities/innovation/innovation-models/guide

The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.

Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.

Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.

Care Recipient Eligibility

Caregivers caring for people with dementia.

Caregiver Eligibility

Caregivers caring for people with dementia.

Iowa Compass is a partner of the Iowa Aging and Disability Resource Center (ADRC) network. Iowa Compass provides information about aging-related and disability-related services and supports for Iowans. network.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 779-2001 711 for Relay

Iowa Concern offers no-cost, confidential support to help Iowans navigate stress, financial challenges, and crisis situations. Iowa Concern helps finding and connecting to trusted resources and referrals.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 447-1985

Iowa County-Specific Veterans Service Officer Contacts (VSO)

https://va.iowa.gov/counties

Contact Information

(800) 838.4692

Iowa Department of Veterans Affairs

https://va.iowa.gov/

Provides Iowa’s aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(800) 838-4692 Emergency: (800) 273-8255

The Health Insurance Premium Payment (HIPP) program is one of the services available to people who receive Medicaid. The HIPP program helps people get or keep health insurance through their employer by reimbursing the cost of the health insurance premium.

Learn more about the Benefits of the Health Insurance Premium Payment Program.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Toll-Free Number: 1-888-346-9562 Local Number: 515-974-3282

Iowa Medicaid is a joint federal and state program that helps pay for health care for eligible low-income individuals and families.

Contact the local HHS Office for more information and assistance.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Health and Human Services (HHS): (800) 972-2017

Iowa SHIIP and SMP

https://shiip.iowa.gov/

Iowa SHIIP (Senior Health Insurance Information Program) and SMP (Senior Medicare Patrol) is Iowa’s Medicare resource providing Medicare counseling and resources to Iowans, working to ensure Iowans have the information needed to make informed Medicare decisions, and prevent fraud.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 351-4664 TTY: (800) 735-2942

Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.

Contact Information

Toll-Free: 877-267-2323

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.

SAMHSA’s National Helpline

https://www.samhsa.gov/find-help/national-helpline

The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.

Also visit the online treatment locator to find help near you.

Contact Information

1-800-662-4357

USAGov – Government Benefits

https://www.usa.gov/benefits

Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

USAGov Contact Center: 1-844-872-4681

Can I Get Help While Living In My Home?

Aging & Disability Resource Center (ADRC) Network

https://hhs.iowa.gov/family-community/aging-disability-resource-center

The ADRC network’s purpose is to help older adults and people with disabilities in Iowa to find services they need. Aging and Disability Resource Center (ADRC) helps people find services and support in their community. ADRCs help people stay healthy and independent by providing information and connecting people to available resources so they can make informed decisions about their lives.

In Iowa, ADRCs include Area Agencies on Aging (AAAs) and Disability Access Points (DAPs).

Care Recipient Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Caregiver Eligibility

Older Iowans, adults with disabilities, veterans, and caregivers.

Contact Information

1-800-779-2001

In Iowa, there are seven programs called Home-and Community-Based Services (HCBS) Waivers. These waivers help people stay in their own homes or communities instead of going to a medical institution.

These programs also provide funding and personalized support for individuals who qualify, allowing them to receive the care they need while remaining in a familiar environment.

To learn more about the HCBS Waiver Program, please read the HCBS Waiver Program brochure.

Care Recipient Eligibility

Anyone (excluding spouses)

Caregiver Eligibility

Anyone (excluding spouses)

Contact Information

Iowa Medicaid Member Services: 1-800-338-8366

Hospice and Palliative Care Association of Iowa (HPCAI)

http://www.hpcai.org/

HPCAI provides information about end-of-life care.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

515-243-1046

ILRU Directory of Centers for Independent Living (CILs) and Associations

https://www.ilru.org/cil-directory

The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.

Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.

Check out the website link to access the CIL listing by state – including program names, website and contact information.

Iowa City Hospice

http://iowacityhospice.org/

Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(319) 351-5665 (800) 897-3052

Iowa Compass is a partner of the Iowa Aging and Disability Resource Center (ADRC) network. Iowa Compass provides information about aging-related and disability-related services and supports for Iowans. network.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 779-2001 711 for Relay

Iowa County-Specific Veterans Service Officer Contacts (VSO)

https://va.iowa.gov/counties

Contact Information

(800) 838.4692

Iowa Department of Inspections, Appeals & Licensing (DIAL)

http://www.state.ia.us/government/dia/index.html

DIAL is responsible for inspecting and licensing long-term care providers and health facilities – such as Adult Day Services, Assisted Living facilities, Elder Group Homes, Home Health Agencies, Hospices, Nursing facilities or Skilled Nursing facilities (long term care), Residential Care facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

515-281-3425

Iowa HHS/Aging Services – Support Services

https://hhs.iowa.gov/family-community/aging-services/support-services

Supports and services are available to assist older adults in remaining in their homes or returning to their homes after a hospital or long-term facility stay. Iowa’s Area Agencies on Aging can provide older adults with current information on opportunities and services available within the community. Supportive services are key to helping older adults maintain their long-term independence. Services and benefits may include:

  • Options Counseling
  • Case Management
  • Assisted Transportation or Transportation Services
  • Behavioral Health Supports
  • Chore Assistance
  • Homemaker Services
  • Material Aid
  • Personal Care
  • Respite Care

Connect with the local Area Agency on Aging to learn more about supportive services.

Care Recipient Eligibility

Anyone 

Caregiver Eligibility

Anyone 

Contact Information

1-800-779-2001

Iowa Statewide Independent Living Council (SILC)

https://iowasilc.org/

The Iowa Statewide Independent Living Council is a governor-appointed nonprofit council committed working to strengthen the voice of Iowans with disabilities on issues affecting their lives, to build a statewide network of centers for independent living, and to collaborate with our partners in advancing the independence, productivity, and full inclusion of Iowans with disabilities.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(515) 282-0275

Supportive services are key to helping older adults maintain their long-term independence – assist older adults in remaining in their homes or returning to their homes after a hospital or long-term facility stay. Services include: Information and Assistance, Options Counseling, Case Management, Assisted Transportation/Transportation Services, Behavioral Health Supports, Chore Assistance, Homemaker Services, Material Aid, Personal Care, Respite Care.

Connect with your local Area Agency on Aging (AAA) for more details about the supports for which you or your loved one may be eligible.

Contact Information

1-800-972-2017

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Hospice and Palliative Care Association of Iowa (HPCAI)

http://www.hpcai.org/

HPCAI provides information about end-of-life care.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

515-243-1046

Iowa City Hospice

http://iowacityhospice.org/

Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(319) 351-5665 (800) 897-3052

Iowa Department of Inspections, Appeals & Licensing (DIAL)

http://www.state.ia.us/government/dia/index.html

DIAL is responsible for inspecting and licensing long-term care providers and health facilities – such as Adult Day Services, Assisted Living facilities, Elder Group Homes, Home Health Agencies, Hospices, Nursing facilities or Skilled Nursing facilities (long term care), Residential Care facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

515-281-3425

National Alliance for Care at Home (the Alliance)

https://allianceforcareathome.org/about/

The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).

Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – Iowa

https://www.caregiver.org/uploads/2023/08/Iowa-2023-1-1.pdf

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