Family Caregiver Services by State
I am New to Caregiving Where Do I Start?
Aging & Disability Resource Center (ADRC) Network
The ADRC network’s purpose is to help older adults and people with disabilities in Iowa to find services they need. Aging and Disability Resource Center (ADRC) helps people find services and support in their community. ADRCs help people stay healthy and independent by providing information and connecting people to available resources so they can make informed decisions about their lives.
In Iowa, ADRCs include Area Agencies on Aging (AAAs) and Disability Access Points (DAPs).
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
ARCH National Respite Network and Resource Center
ARCH National Respite Network and Resource Center assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Best Programs for Caregiving
Best Programs for Caregiving is a free online directory of proven support programs for family and friend caregivers of individuals living with dementia.
Whether you are a caregiver yourself or a professional whose organization serves dementia caregivers, you can use this tool to find and compare evidence-based programs from across the country that address caregivers’ unique challenges and concerns.
A partnership between Benjamin Rose Institute on Aging and Family Caregiver Alliance.
Caregiver Resources
Caregiver resources include Information and Assistance, Family Caregiver Counseling, Respite Care Services, Family Caregiver Support Groups.
Connect with your Area Agency on Aging to learn more about these programs.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Eldercare Locator
The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Family Caregiver Alliance (FCA)
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.
CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey, register online here. Your personal information is private and secure. FCA does not share information without your signed permission.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Area Agencies on Aging
List of Area Agencies on Aging (AAA) – six Area Agencies on Aging in Iowa cover all 99 counties, and other resources for people 60 years or older.
Find your Iowa Area Agencies on Aging by selecting your County or from the Map.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Can I Get Help to Pay for Caregiving?
CareScout (cost of long-term care near you)
The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The CareScout tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.
Home-and Community-Based Services (HCBS) Waivers
In Iowa, there are seven programs called Home-and Community-Based Services (HCBS) Waivers. These waivers help people stay in their own homes or communities instead of going to a medical institution.
These programs also provide funding and personalized support for individuals who qualify, allowing them to receive the care they need while remaining in a familiar environment.
To learn more about the HCBS Waiver Program, please read the HCBS Waiver Program brochure.
Care Recipient Eligibility
Anyone (excluding spouses)
Caregiver Eligibility
Anyone (excluding spouses)
Contact Information
Iowa Medicaid Member Services: 1-800-338-8366
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
Related Resources
Government Benefits and General Information
Caregiver Resources
Caregiver resources include Information and Assistance, Family Caregiver Counseling, Respite Care Services, Family Caregiver Support Groups.
Connect with your Area Agency on Aging to learn more about these programs.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Family Resource Center
A consumer-driven program to assist the disabled through Medicaid Waiver services to live as independently as possible in their home communities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Guiding an Improved Dementia Experience (GUIDE) Model
The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The GUIDE Model focuses on comprehensive, coordinated dementia care and aims to improve quality of life for people with dementia, reduce strain on their unpaid caregivers, and enable people with dementia to remain in their homes and communities.
Check out where health care innovation is happening HERE. You may also find the GUIDE Participant List to check for additional information.
Family Caregiver Alliance (FCA) offers the GUIDE program in partnership with Tembo Health. Learn more information about this GUIDE program through FCA HERE.
Care Recipient Eligibility
Caregiver Eligibility
Iowa Compass
Iowa Compass is a partner of the Iowa Aging and Disability Resource Center (ADRC) network. Iowa Compass provides information about aging-related and disability-related services and supports for Iowans. network.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Concern
Iowa Concern offers no-cost, confidential support to help Iowans navigate stress, financial challenges, and crisis situations. Iowa Concern helps finding and connecting to trusted resources and referrals.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa County-Specific Veterans Service Officer Contacts (VSO)
Contact Information
Iowa Department of Veterans Affairs
Provides Iowa’s aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Medicaid
Iowa Medicaid is a joint federal and state program that helps pay for health care for eligible low-income individuals and families.
Contact the local HHS Office for more information and assistance.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa SHIIP and SMP
Iowa SHIIP (Senior Health Insurance Information Program) and SMP (Senior Medicare Patrol) is Iowa’s Medicare resource providing Medicare counseling and resources to Iowans, working to ensure Iowans have the information needed to make informed Medicare decisions, and prevent fraud.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Medicaid Profiles by State
Explore every state’s Medicaid and CHIP program to learn about coverage for low-income adults, Medicaid/CHIP eligibility, enrollment and renewal processes and systems on the State Profiles map – by clicking on the map or select from drop down to see each state’s Medicaid and CHIP profile. Scroll down to the bottom page of the State profile to check eligibility requirements, enrollment process, etc.
Contact Information
Medicaid State Waivers List
Information about eligibility and requirements for home and community-based services by state.
National Resource Center on Native American Aging (NRCNAA)
The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.
Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.
Contact Information
National Resources for Family Caregivers
Individuals, families and caregivers can explore this list of national organizations to help locate information and support on topics and issues – such as caregiver and older adult resources, government resources, faith-based organizations, health organizations, rare disorders, legal assistance, palliative and hospice, veterans’ resource.
SAMHSA’s National Helpline
The Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline, 1-800-662-HELP (4357) (also known as the Treatment Referral Routing Service), is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations.
Also visit the online treatment locator to find help near you.
Contact Information
USAGov – Government Benefits
Get information on government programs that may help pay for food, housing, health care, and other basic living expenses. Learn about Social Security and government checks.
Care Recipient Eligibility
N/A
Caregiver Eligibility
N/A
Contact Information
Related Resources
Where Do I Go for Legal Help And/Or Dependent Person Mistreatment?
Iowa Department of Inspections, Appeals & Licensing (DIAL)
DIAL is responsible for inspecting and licensing long-term care providers and health facilities – such as Adult Day Services, Assisted Living facilities, Elder Group Homes, Home Health Agencies, Hospices, Nursing facilities or Skilled Nursing facilities (long term care), Residential Care facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa HHS’ Dependent Adult Abuse Program
Iowa HHS’ Dependent Adult Abuse Program is a core component of Iowa’s Adult Protective Services (APS) system. The Dependent Adult Abuse Program, housed within the Iowa Department of Health and Human Services (HHS), is responsible for receiving and responding to reports of suspected abuse, neglect, or financial exploitation of dependent adults living in the community.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Legal Aid
Free legal help with civil law problems for eligible low income Iowa residents. Elder law program component offering consumer & finance, guardianship, public benefits and elders, nursing home and long term care, etc.
Contact Information
(800) 532-1275
Office of the State Long-Term Care Ombudsman
The Office of the State Long-Term Care Ombudsman offers free, confidential advocacy for Iowans living in nursing facilities, assisted living programs, residential care facilities, and elder group homes. The Office of the State Long-Term Care Ombudsman also helps residents and families understand their rights and address concerns about long-term care.
The Office of the State Long-Term Care Ombudsman also assists Medicaid managed care members who live in a long-term care facility or receive services through an HCBS waiver, making sure they understand their rights and receive the services they need.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Related Resources
Can I Get Help While Living In My Home?
Aging & Disability Resource Center (ADRC) Network
The ADRC network’s purpose is to help older adults and people with disabilities in Iowa to find services they need. Aging and Disability Resource Center (ADRC) helps people find services and support in their community. ADRCs help people stay healthy and independent by providing information and connecting people to available resources so they can make informed decisions about their lives.
In Iowa, ADRCs include Area Agencies on Aging (AAAs) and Disability Access Points (DAPs).
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Home-and Community-Based Services (HCBS) Waivers
In Iowa, there are seven programs called Home-and Community-Based Services (HCBS) Waivers. These waivers help people stay in their own homes or communities instead of going to a medical institution.
These programs also provide funding and personalized support for individuals who qualify, allowing them to receive the care they need while remaining in a familiar environment.
To learn more about the HCBS Waiver Program, please read the HCBS Waiver Program brochure.
Care Recipient Eligibility
Anyone (excluding spouses)
Caregiver Eligibility
Anyone (excluding spouses)
Contact Information
Iowa Medicaid Member Services: 1-800-338-8366
Hospice and Palliative Care Association of Iowa (HPCAI)
HPCAI provides information about end-of-life care.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
ILRU Directory of Centers for Independent Living (CILs) and Associations
The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living.
Centers for Independent Living (CILs) provide independent living services for people with disabilities. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.
Check out the website link to access the CIL listing by state – including program names, website and contact information.
Iowa City Hospice
Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Compass
Iowa Compass is a partner of the Iowa Aging and Disability Resource Center (ADRC) network. Iowa Compass provides information about aging-related and disability-related services and supports for Iowans. network.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa County-Specific Veterans Service Officer Contacts (VSO)
Contact Information
Iowa Department of Inspections, Appeals & Licensing (DIAL)
DIAL is responsible for inspecting and licensing long-term care providers and health facilities – such as Adult Day Services, Assisted Living facilities, Elder Group Homes, Home Health Agencies, Hospices, Nursing facilities or Skilled Nursing facilities (long term care), Residential Care facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa HHS/Aging Services – Support Services
Supports and services are available to assist older adults in remaining in their homes or returning to their homes after a hospital or long-term facility stay. Iowa’s Area Agencies on Aging can provide older adults with current information on opportunities and services available within the community. Supportive services are key to helping older adults maintain their long-term independence. Services and benefits may include:
- Options Counseling
- Case Management
- Assisted Transportation or Transportation Services
- Behavioral Health Supports
- Chore Assistance
- Homemaker Services
- Material Aid
- Personal Care
- Respite Care
Connect with the local Area Agency on Aging to learn more about supportive services.
Care Recipient Eligibility
Anyone
Caregiver Eligibility
Anyone
Contact Information
Iowa Statewide Independent Living Council (SILC)
The Iowa Statewide Independent Living Council is a governor-appointed nonprofit council committed working to strengthen the voice of Iowans with disabilities on issues affecting their lives, to build a statewide network of centers for independent living, and to collaborate with our partners in advancing the independence, productivity, and full inclusion of Iowans with disabilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Support Services
Supportive services are key to helping older adults maintain their long-term independence – assist older adults in remaining in their homes or returning to their homes after a hospital or long-term facility stay. Services include: Information and Assistance, Options Counseling, Case Management, Assisted Transportation/Transportation Services, Behavioral Health Supports, Chore Assistance, Homemaker Services, Material Aid, Personal Care, Respite Care.
Connect with your local Area Agency on Aging (AAA) for more details about the supports for which you or your loved one may be eligible.
Contact Information
Related Resources
Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)
Hospice and Palliative Care Association of Iowa (HPCAI)
HPCAI provides information about end-of-life care.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa City Hospice
Provides information about end-of-life care. The website includes a directory which allows the user to locate a local hospice office. A list of local hospice service providers can be obtained from your local hospice office.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
Iowa Department of Inspections, Appeals & Licensing (DIAL)
DIAL is responsible for inspecting and licensing long-term care providers and health facilities – such as Adult Day Services, Assisted Living facilities, Elder Group Homes, Home Health Agencies, Hospices, Nursing facilities or Skilled Nursing facilities (long term care), Residential Care facilities.
Care Recipient Eligibility
Caregiver Eligibility
Contact Information
National Alliance for Care at Home (the Alliance)
The National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) have come together to form the National Alliance for Care at Home (the Alliance).
Find the right Home Care or Hospice Agency using this comprehensive database of more than 10,000 home care and hospice agencies to find an agency near you: https://allianceforcareathome.org/find-a-provider/