Website provides a directory of Veterans Service Organization in the US. In addition, find questions and answers to some of the most frequently asked questions to FCA from individuals providing care and support to a military Veteran here: https://www.caregiver.org/faq-caregiving-veteran If you would prefer to talk to someone about your Veteran support options, we recommend that you start by calling the toll-free National Caregiver Support Line: 1-855-260-3274.
Family Care Navigator
Government Health & Disability Programs
Veterans
Family member of a veteran.
Online resource that provides information on low-cost and affordable health insurance, health care, and hospice. It is a free service from the Actors' Fund of America's Health Insurance Resource Center.
For Artists, Performers, Freelancers, and Self-Employed
Anyone
(800) 798-8447
Ext. 265
An online service of the National Council on Aging to help older adults and their families determine their eligibility for and enroll in federal, state, local and private benefit programs including Medicare and Medicaid.
Anyone
Anyone
__
An online service of the National Institutes of Health with current information about federally and privately supported clinical trials in human volunteers to answer specific health questions. The website offers information about a trial's purpose, who may participate, locations, and phone numbers for more details.
Anyone
Anyone
__
Government site links to information and resources on a wide range of disability related topics, such as: benefits, civil rights, community services, health services and more. The site includes a state and local resources map which allows the user to locate disability related information/services in their area.
Anyone
Anyone
___
The Family and Medical Leave Act (FMLA) is a federal law that allows employees to take up to 12 weeks of unpaid leave per year to care for themselves, or for a seriously ill family member, or for a new child without losing their jobs or health care insurance. Some states have additional benefits, such as paid family leave.
Workers can take leave to care for:
- An ill spouse, child, or parent (some states include additional family members)
- A new baby or adopted child
- Themselves when they have a serious illness
Eligible workers must:
- Work at companies with 50 or more employees at or within 75 miles of the work site
- Have worked at least 1,250 hours during the 12-months prior to taking leave
Department of Labor:
(866) 487-2365
National Partnership for Women and Families:
(202) 986-2600
Call the Wage and Hour Division's toll-free help line:
(866) 487-9243
Government web site for consumers that links to over 1,500 health-related organizations and provides consumer guides on issues including long-term care, Medicare, and nursing homes.
Anyone
Anyone
__
Provides online directory of nonprofit legal services providers throughout the country.
Anyone, with special attention on people living on low or moderate income
Anyone, with special attention on people living on low or moderate income
See website for local contact information
Medicare is a government health insurance program for adults age 65 and older, some people under age 65 with disabilities, and people with End-Stage Renal disease:
- Part A covers hospital costs as well as limited skilled nursing, home health and hospice care, without a monthly premium.
- Part B covers medical costs, such as doctor's visits and outpatient care, to those who pay a monthly premium.
- Part D includes limited prescription drug coverage through private insurance companies for those who choose to pay a monthly premium.
Multiple requirements:
- U.S. citizen or legal resident
- Any adult age 65 or older OR any adult receiving Social Security Disability Insurance OR any adult with End-Stage Renal Disease or ALS
__
(800) MEDICAR
(800) 633-4227
In California, call:
(800) 434-0222
Nonprofit organization that provides direct assistance to people with questions or concerns about Medicare. Information is provided about Medicare drug coverage, health plan options, and rights and benefits. Assistance is available online or by a telephone hotline.
Anyone
Anyone
(800) 333-4114
Hotline counselors are available weekdays
9:00am-1:00pm
(Eastern Time)
An online resource from the National Institute on Health that helps consumers find health services by location and service type. Services include:
- In-home care
- Nursing homes
- Hospitals
- Support groups
- Hospice and palliative care
- Physicians
- Pharmacies
Also provides health and drug information for patients and family members.
(This list is not exhaustive, please visit website for information on more services)
Anyone
Anyone
__
Provides assistance in obtaining veterans' benefits and answers questions regarding rules and regulations concerning veterans. Wesbite provides directory of Veteran Service Officers across the country.
Veterans
Family members of a veteran
See website for local contact information
Government website offers practical information and options on planning for future long-term care needs.
Anyone
Anyone
(202) 619-0724
A non-profit organization that provides online information to those who cannot afford medicine or healthcare costs. Website provides information about prescription assistance programs for specific medications and diseases, as well as government programs.
Varies depending on the specific assistance program.
__
No hotline.
Provides information about how qualifying patients without prescription drug coverage can get the medicines they need for free or nearly free through patient assistance programs. The website and hotline offer a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies.
Varies depending on the specific assistance program.
--
(888) 477-2669
A monthly cash benefit from the federal government for people who are unable to work for a year or more because of a disability.
Multiple requirements:
- Have worked in jobs covered by Social Security
- Be disabled, according to Social Security's definition of disability
__
(800) 772-1213
A monthly cash benefit from the federal government to meet basic needs for food, clothing, and shelter for low-income older adults and people with disabilities.
Multiple requirements:
- Age 65 or older OR Blind or disabled, according to Social Security's definition of disability (any age)
- Resources (real estate, bank accounts, cash, stocks and bonds) cannot exceed $2,000 per person ($3,000 per couple)
__
(800) 772-1213
Provides primary care, specialized care, and related minor medical and social support services to U.S. veterans, service members and their families. VA benefits and services include:
- Compensation
- Pension
- Health Care
- Vocational Rehabilitation and Employment
- Education and Training
- Home Loans
- Life Insurance
- Dependents and Survivors
- Burial
- A veteran OR
- An active duty military service member OR
- A member of the Reserve or National Guard OR
Post - 9/11 (2011)
__Services for caregivers of post 9/11 veterans call the hotline at: 1-855-260-3274 (The criteria will be different times/wars served to access the numerous caregiver benefits under the new law).
Information and Assistance (800) 827-1000
Caregiver Support Line: (855) 260-3274
This program is available through the Department of Veteran Affairs. A pension and compensation income benefit is payable to any qualified veteran. Deductions from the maximum pensionable amount are allowed to be made for unreimbursed medical expenses. This allows veterans with household incomes larger than the maximum pensionable amount to qualify for a monthly benefit.
- The veteran must have served in active military for 90 or more consecutive days, with 1 day during a period of wartime as defined by the Veterans Administration.
- The veteran must have been discharged under anything other than dishonorable conditions.
- The veteran must be over the age of 65 or disabled.
__
(800) 827-1000
Services & Policies for Family Caregivers
A consumer organization for people 50 years and older. Provides online information about issues related to aging, including:
- Long-term care and retirement
- Financial and legal information
- Resources on family caregiving
- Internet resources on aging
Anyone
Anyone
(888) OUR-AARP
(888) 687-2277
Available weekdays
7:00am - 12:00 midnight
(Eastern Time)
Online resource that provides information on low-cost and affordable health insurance, health care, and hospice. It is a free service from the Actors' Fund of America's Health Insurance Resource Center.
For Artists, Performers, Freelancers, and Self-Employed
Anyone
(800) 798-8447
Ext. 265
Online directory of aging and caregiver support services. Offers access to professionals in aging, resources, educational articles, virtual classroom, ask the expert, and support groups.
Anyone
Anyone
888-244-6499
Provides information and planning tips about long-term care and caregiving. Its website includes a Find Facilities and Services search tool to help consumers find long-term care housing, caregiver support, hospice and palliative care programs and other aging services. Offers a Caregiver Kit to help caregivers.
Anyone
Anyone
See webpage for local contact information
Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
- Recognize dementia care
- Plan and pay for care
- Communicate with care providers
- Find local support and resources
Anyone
Anyone
(800) 272-3900
Hotline available
24 hours 7 days a week
Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.
Anyone
Anyone
919-490-5577
An online forum for caregivers and neurology patients to provide support for each other and to learn about community resources and services.
Anyone with a neurological disorder.
Anyone caring for someone who meets care recipient eligibility.
__
Provides support services for anyone affected by cancer including limited financial assistance grants for:
- Transportation
- Child care
- Home care
Patient must currently be receiving treatment for cancer
Anyone
(800) 813-4673
Provides online information and support to family caregivers, including a resource that helps to identify and locate caregiver support groups and other caregiver resources in specific counties, including non-profit organizations, rural caregiver resources and products and services.
Anyone
Anyone
(800) 829-2734
A program that offers cash back on goods and products that are not typically covered by insurance or Medicare. Products eligible for cash back include nutrition, incontinence supplies, bathing and skin care, and aids for daily living.
Anyone who purchases caregiving products.
Anyone who purchases caregiving products.
(800) 888-0889
Provides information about a variety of caregiving topics. Also provides access to geriatric care specialists.
Anyone
Anyone
Eldercare Consultants: 773-508-1015
A program of the National Hospice and Palliative Care Organization that offers free resources and information (online and over the phone) about end-of-life care and services. Includes information about:
- Advance care planning
- Financial assistance
- Hospice care and grief
Anyone
Anyone
(800) 658-8898
HelpLine in Spanish: (877) 658-8896
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community. Caring.com's content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Anyone, but their focus is primarily on the family caregiver caring for 50+
Anyone, but their focus is primarily on the family caregiver caring for 50+
Talk to a Family Adviser for free: (866) 824-8174
An online support group for adults caring for their parents or other relatives. Also provides a list of in-person support groups in different states.
__
Anyone caring for a family member or friend.
(800) 227-7294
Offers over 500 online support communities and information exchange on a variety of health and wellness issues, including caregiving.
Anyone
Anyone
__
Assists children and adults with disabilities and their families by providing adult day services, including medical and social services.
Children and adults with disabilities
__
(800) 221-6827
FCA is a nonprofit caregiver support organization that offers online resources, fact sheets and electronic newsletters which serve as a central source of information and assistance to family caregivers in every state. FCA's National Center on Caregiving offers a national telephone hotline. The website also hosts three online support groups open to the public for caregivers and their loved ones:
- Caregiver Online Group
- Huntington's Disease and Movement Disorders Online Group
- LGBT Caring Community Online Support Group
Care recipients looking for information may find it on FCA's website or by calling the hotline. The online groups are not designed for care recipients.
Caregiver Online Group: Family and friends caring for adults with cognitive disorders and other chronic health conditions.
Huntington's Disease and Movement Disorders Online Group: Families, friends and professionals affected by HD, Parkinson's or other movement disorder.
LGBT Caring Community Online Support Group: Lesbian, gay, bisexual and transgender caregivers of adults with chronic health problems.
(800) 445-8106
This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care. Designed to ensure families have access to new, supportive settings created for the purpose of educating, empowering and energizing.
Anyone
Anyone
(888) 655-3392 (888 OK LEEZA)
In Illinois:
(815) 741-0077
In Florida:
(954) 883-7240
In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414
An online volunteer coordination service for friends, family, colleagues, and neighbors to assist older adults in need. Offers a private group calendar to organize meals delivery, rides, and other caregiving tasks for a loved one.
Anyone
Anyone
__
Offers a national telephone hotline, online resources and printed publications which serve as a central source of information and assistance to family caregivers in every state.
Anyone
Anyone
(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)
The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits. Interfaith volunteer caregiving is based on the belief that people of ALL faiths include a tenet to help their neighbors by putting their faith into action.
Eligibility varies by program (see website)
anyone
304-907-0428 (note: only give this number if they absolutely do not have access to a computer)
Offers a handbook to empower caregivers, concerned friends and neighbors with steps to create and maintain a caregiving family to support the ill, disabled or aging and their family caregiver. Scripted first meeting, 23 forms. Telephone and email support.
Anyone
Anyone
(212) 991-9688
A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
__
Any spouse or partner caring for someone who is chronically ill or disabled.
(800) 838-0879
Check Support Groups, Contacts list under Find Caregiver Support on website for local offices
Legal Help & Advocacy
A consumer organization for people 50 years and older. Provides online information about issues related to aging, including:
- Long-term care and retirement
- Financial and legal information
- Resources on family caregiving
- Internet resources on aging
Anyone
Anyone
(888) OUR-AARP
(888) 687-2277
Available weekdays
7:00am - 12:00 midnight
(Eastern Time)
Provides older adults and their family members with practical information, advice and legal tools to ensure wishes at end-of-life will be respected, including the Five Wishes Living Will document.
Anyone
Anyone
(850) 681-2010
or Toll Free:
(888) 594-7437
Provides an online guide to finding legal services in each state, including lawyer referral, court information, state laws and legal rights.
Anyone
Anyone
Headquarters: (800) 285-2221
See website for local contact information
A program of the National Hospice and Palliative Care Organization that offers free resources and information (online and over the phone) about end-of-life care and services. Includes information about:
- Advance care planning
- Financial assistance
- Hospice care and grief
Anyone
Anyone
(800) 658-8898
HelpLine in Spanish: (877) 658-8896
Provides information, training and technical assistance and a free hotline on the Americans with Disabilities Act (ADA). A service of the National Institute on Disability and Rehabilitation.
Anyone
Anyone
(800) 949-4232
The Family and Medical Leave Act (FMLA) is a federal law that allows employees to take up to 12 weeks of unpaid leave per year to care for themselves, or for a seriously ill family member, or for a new child without losing their jobs or health care insurance. Some states have additional benefits, such as paid family leave.
Workers can take leave to care for:
- An ill spouse, child, or parent (some states include additional family members)
- A new baby or adopted child
- Themselves when they have a serious illness
Eligible workers must:
- Work at companies with 50 or more employees at or within 75 miles of the work site
- Have worked at least 1,250 hours during the 12-months prior to taking leave
Department of Labor:
(866) 487-2365
National Partnership for Women and Families:
(202) 986-2600
Call the Wage and Hour Division's toll-free help line:
(866) 487-9243
Provides online directory of nonprofit legal services providers throughout the country.
Anyone, with special attention on people living on low or moderate income
Anyone, with special attention on people living on low or moderate income
See website for local contact information
LSC, also called Legal Aid, is a government resource that provides legal assistance to low income Americans. The LSC provides an online listing of member organizations that provide free legal assistance to eligible clients.
Must be low income (income limits vary by program)
Must be low income (income limits vary by program)
(202) 295-1500
See website for local contact information
Nonprofit organization that provides direct assistance to people with questions or concerns about Medicare. Information is provided about Medicare drug coverage, health plan options, and rights and benefits. Assistance is available online or by a telephone hotline.
Anyone
Anyone
(800) 333-4114
Hotline counselors are available weekdays
9:00am-1:00pm
(Eastern Time)
Provides an online directory of its members to locate attorneys that deal with legal issues affecting elderly and disabled adults, including
- Public benefits
- Probate and estate planning
- Guardianship and conservatorship
- Health and long-term care planning
Anyone
Anyone
(703) 942-5711
See website for local contact information
Provides assistance in obtaining veterans' benefits and answers questions regarding rules and regulations concerning veterans. Wesbite provides directory of Veteran Service Officers across the country.
Veterans
Family members of a veteran
See website for local contact information
Offers an online State Resource Directory for Elder Abuse Prevention which includes helplines and hotlines to report suspected elder abuse, neglect, or exploitation. Also includes state laws and regulations that protect older adults.
Anyone
Anyone
Go to their website (NCEA) for a state by state resource help hotline listing
An online resource that defines the role of a long-term care ombudsman and how he/she can help families of nursing home residents. It also includes a state-by-state directory of long-term care ombudsmen.
Anyone
Anyone
(202) 332-2275
A non-profit organization that provides online information to those who cannot afford medicine or healthcare costs. Website provides information about prescription assistance programs for specific medications and diseases, as well as government programs.
Varies depending on the specific assistance program.
__
No hotline.
Provides information about how qualifying patients without prescription drug coverage can get the medicines they need for free or nearly free through patient assistance programs. The website and hotline offer a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies.
Varies depending on the specific assistance program.
--
(888) 477-2669
Provides mediation between patients and their employers and/or creditors to resolve insurance, job retention and/or debt crisis relating to the patient's condition.
Anyone
Anyone
(800) 532-5274
Offers consumers, families and advocates resources and information on long-term care including; an overview of each state's nursing home system and licensing agencies, and a consumer's guide to choosing a nursing home.
Anyone
Anyone
(202) 332-2275
WorkLife Law operates a hotline which provides legal assistance to caregivers who encounter discrimination in the workplace due to their family responsibilities. Services include:
- Legal advice/assistance
- Advocacy
- Attorney referrals
Anyone
Anyone
(800) 981-9495
(415) 565-4640
(202) 680-8964
Legal Hotline: (415) 703-8276
A nonprofit organization with an online directory that allows people to research, compare, locate and obtain mobility and assistive products, such as wheelchairs, canes, walkers, bars and rails.
Anyone
Anyone
(408) 263-8000
Provides information on assistive technology and rehabilitation equipment, including how to find and purchase it. Also offers an online forum for consumers, caregivers and others to submit and read reviews of products and classified ads of equipment for sale.
Anyone
Anyone
(800) 227-0216
or
(301) 608-8998
Formerly National Association of Professional Geriatric Care Managers
Online directory of its members, who provide services throughout the country at varying fees. These professionals (nurses, social workers, etc.) specialize in aging and elder care and can help families assess needs and plan suitable care.
Any older adult
Anyone
See website for regional chapters
Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
- Recognize dementia care
- Plan and pay for care
- Communicate with care providers
- Find local support and resources
Anyone
Anyone
(800) 272-3900
Hotline available
24 hours 7 days a week
Government-sponsored website with a directory of assistive devices and other products, which includes information about cost and vendors.
Anyone
Anyone
(800) 726-9119
An online directory of AJFCS member agencies throughout the country. Services include:
- Care management
- Chore services
- Adult day services
- Kosher meals on wheels
- Respite care
Eligibility varies by program (see website)
__
—
Email: [email protected]
Provides support services for anyone affected by cancer including limited financial assistance grants for:
- Transportation
- Child care
- Home care
Patient must currently be receiving treatment for cancer
Anyone
(800) 813-4673
Provides social services to individuals in need, including family support, respite care and home care services.
Eligibility varies by program (see website)
__
See website for local contact information
Comfort Zone provides GPS location updates using a portable cellular device. Family members can monitor a person's location using a graphical web-based mapping program. Families can also decide on the level of monitoring needed, such as verifying location from a computer; receiving alerts when the person has traveled in or out of a zone; or just emergency assistance if there is a wandering incident.
Anyone
Anyone
1-877-259-4850
Assists children and adults with disabilities and their families by providing adult day services, including medical and social services.
Children and adults with disabilities
__
(800) 221-6827
Provides information about end-of-life care. Its website includes a Locate a Hospice search which allows the user to search for hospice and palliative care programs, and a Caregiver's Corner that offers publications and tips on caregiving for persons near the end-of-life.
Anyone
Anyone
(800) 854-3402
or
(202) 457-5811
This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care. Designed to ensure families have access to new, supportive settings created for the purpose of educating, empowering and energizing.
Anyone
Anyone
(888) 655-3392 (888 OK LEEZA)
In Illinois:
(815) 741-0077
In Florida:
(954) 883-7240
In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414
Provides services ranging from health care to disaster response, as well as services for children and families and care for older adults.
Eligibility varies by program (see website)
__
See website for local chapter contact information
Offers online directory of local meal programs across the country for adults who are elderly, homebound, disabled, frail, or at risk.
Anyone
Anyone
(888) 998-6325
Online directory of NADSA member agencies throughout the country (including adult day services and adult day health programs).
Anyone
Anyone
(877) 745-1440
Online Agency Locator helps consumers to find and choose a home care provider in their state and local area to match their specific needs. Database consists of NAHC members, more than 20,000 home care and hospice agencies.
Anyone
Anyone
(202) 547-7424
See website for local contact information
The National Center on Senior Transportation's mission is to increase transportation options for older adults and enhance their ability to live more independently within their communities throughout the United States.
Senior or disabled when an individual can not take regular public transportation.
N/A
(866) 528-6278
For hearing impaired, call:
(202) 347-7385
Available weekdays
9:00am - 5:00pm
(Eastern Time)
Provides information about end-of-life care. Its online Find a Provider search allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.
Anyone
Anyone
(800) 658-8898
HelpLine in Spanish:
(877) 658-8896
Sponsored by the University of Southern California, the website features a section entitled Home Modification for Caregivers and an online national directory of home modification resources geared to help older persons remain independent.
Anyone
Anyone
See website for local contact information
The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits. Interfaith volunteer caregiving is based on the belief that people of ALL faiths include a tenet to help their neighbors by putting their faith into action.
Eligibility varies by program (see website)
anyone
304-907-0428 (note: only give this number if they absolutely do not have access to a computer)
Online resource helps consumers locate appropriate health care, supportive services and comprehensive resources in their area. Care.com offers a supportive caregiver guide to senior care issues, informative and detailed articles and a searchable index of caregivers. Services vary by agency but may include:
- Geriatric Case Management
- Assisted Living
- Transportation Services
- Home Care
- Nursing Home Care
- Adult Day Health
- Independent Living
- Anyone requiring care - medical orders from a physician are usually required for care
* Individuals must pay privately. Medicare, Medicaid or private insurance may pay for the service if the care is medically necessary, depending on each payer's eligibility requirements
___
See website for local contact information
Provides assistance to frail older persons and adults with disabilities so they can live independently in their own homes or communities. Volunteers offer:
- Respite for caregivers
- Companionship to care recipients
- Help with various tasks and chores
Frail older adults and adults with disabilities
__
See website for local contact information
Some centers hold monthly meetings of education and support for those who care for older adults. Centers also provide:
- Respite care
- In-home visitors
- Home health aides
- Support groups
- Adult day care
- Information and referral
Eligibility varies by program (see website)
__
(816) 960-2022
Over 1,350 programs operating throughout the country to promote increased access to health care for disease prevention and treatment, and medical rehabilitations for people with disabilities. Services focus on under- and uninsured populations.
Eligibility varies by program (see website)
__
See website for local chapter contact information
Online resource helps consumers locate a VNA in their area. VNAs offer comprehensive home health care or personal care to individuals in their respective communities for a fee. The website includes tips on choosing a home health agency and information about insurance coverage. Services vary by agency but may include:
- Skilled nursing
- Home health aide services
- Rehabilitation therapies: physical, occupational and speech-language
- Medical social services
- Hospice and palliative care services
- Anyone requiring care - medical orders from a physician are usually required for care
* Individuals must pay privately. Medicare, Medicaid or private insurance may pay for the service if the care is medically necessary, depending on each payer's eligibility requirements
__
See website for local contact information
Disease-Specific Organizations
Provides help to ALS patients and their families through research, patient and community services, public education, and advocacy. Includes a nationwide network of 30 certified ALS clinics which provide state-of-the-art, multidisciplinary ALS care and services.
Anyone
Anyone
(800) 782-4747
Online resource reports on the latest scientific findings, creates and maintains public databases of research data, and produces discussion forums.
Anyone
Anyone
___
Provides reliable information, care consultation, and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to:
- Recognize dementia care
- Plan and pay for care
- Communicate with care providers
- Find local support and resources
Anyone
Anyone
(800) 272-3900
Hotline available
24 hours 7 days a week
Conducts clinical trials on promising medications designed to improve cognitive functioning, decrease behavioral disturbances, slow the rate of decline, or delay the onset of Alzheimer's disease.
Anyone
Anyone
(858) 622-5880
Online resource provides current, comprehensive information on Alzheimer's disease and caring for someone with the disease. Includes a database of clinical trials.
Anyone
Anyone
(800) 438-4380
Provides services, care, and resources to individuals confronting dementia, and to their caregivers and families, through AFA member organizations.
322 Eighth Ave., 7th fl.
New York, N.Y. 10001
[email protected]
866-232-8484
Offers programs and services to meet the needs of brain tumor patients and their families such as a monthly e-bulletin with tips on living and coping, support groups and in-person consultation services from social work professionals.
Anyone
Anyone
(800) 886-2282
Provides a national call center, publications and community programs and services for cancer patients and their caregivers.
Anyone
Anyone
(800) 227-2345
Offers patients and their families resources to better manage chronic pain their lives including support groups, videos, and coping tips.
Anyone
Anyone
(800) 533-3231
Provides information and other services to people with diabetes, their families, health professionals and the public.
Anyone
Anyone
(800) 342-2383
See website for local chapter contact information
Provides credible heart disease information for effective prevention and treatment of cardiovascular diseases and stroke.
Anyone
Anyone
(800) 242-8721
See website for local chapter contact information
Provides advocacy, information about prevention, and health education concerning Kidney disease. Also, offers limited financial assistance for the following programs:
- Health Insurance Premium Program
- Medicare Part D
- Safety Net
Anyone
Anyone
(800) 638-8299
Serves as an information clearinghouse and resource center for people with pain, their families and their caregivers, the general public, health care professionals, policymakers, and the media.
Anyone
Anyone
(888) 615-PAIN
(888) 615-7246
Supports research, provides patient and caregiver support and coordinates 65 chapters and 57 information and referral centers.
Anyone
Anyone
(800) 223-2732
Online resource includes information, support, and advocacy for those with Parkinson's disease and their families. Site includes information on early onset Parkinson's.
Anyone
Anyone
(877) 223-3801
A division of the American Heart Association, provides information and referrals to stroke survivors and their caregivers through the Stroke Family Warmline.
Anyone
Anyone
(888) 478-7653
Provides a large number of community-based services nationwide to make life with arthritis easier, including: support groups, informational and exercise classes and free educational brochures and booklets.
Anyone
Anyone
(844) 571-4357 (HELP)
See website for local chapter contact information
Promotes and funds research, and provides information, education and support to people with FTD and their caregivers.
Anyone
Anyone
(866) 507-7222
Serves as a clearinghouse for information and resources on brain injury. Operates a Family Helpline for families of brain injury patients seeking assistance, education and support.
Anyone
Anyone
(800) 444-6443
Serves as a clearinghouse of scientific and medical information about brain injuries. Also provides information and consultations for additional resources.
Anyone
Anyone
(206) 621-8558
National multimedia project offering information and resources about preventing, treating, and living with traumatic brain injury (TBI). Its website includes a series of webcasts, an electronic newsletter, and a section on resources for people affected by TBI and their families.
Anyone
Anyone
(703) 998-2020
A program of the National Cancer Institute, CIS provides personalized, confidential responses to specific questions about cancer. Information specialists are available by telephone and online.
Anyone
Anyone
(800) 4-CANCER
(800-422-6237)
Available Weekdays
9:00am to 4:30pm
(Eastern Time)
*Assistance is also available in Spanish
A nonprofit organization dedicated to helping people with cancer and their loved ones. Offer free services and programs including support groups, stress reduction programs and educational workshops through local chapters in communities across the country.
Anyone
Anyone
(888) 793-WELL
(888) 793-9355
(202) 659-9709
Provides support services for anyone affected by cancer including limited financial assistance grants for:
- Transportation
- Child care
- Home care
Patient must currently be receiving treatment for cancer
Anyone
(800) 813-4673
Provides information to promote awareness, prevention and early detection of diabetes. Offers free online monthly newsletter and screening tool. A listing of diabetes education programs and support groups in all 50 states is available.
Anyone
Anyone
See website for local contact information
Offers more than a dozen online support groups and resources about brain tumors and related conditions.
Anyone with a brain tumor.
Anyone caring for someone who meets care recipient eligibility.
(877) 252-8480
Provides information on Huntington's disease and resources for caregivers, including a list of online support groups.
Anyone
Anyone
___
Provides support, information and educational services to Huntington's disease families through a network of volunteer-based chapters and affiliates.
Anyone
Anyone
(800) 345-4372
An online service that offers state-specific information and resources on Huntington's disease for individuals and caregivers.
Anyone
Anyone
See website for local contact information
*Note: individual state pages are no longer being updated.
Offers services and resources to patients, their families and professionals including personal support and educational materials about hydrocephalus.
Anyone
Anyone
(888) 598-3789
Available every day from
9:00am-4:00pm
(Pacific Time)
Operates a call center that provides information on local resources as well as support and guidance. Provides financial assistance to qualified blood cancer patients, information about leukemia and lymphoma, and other information for patients and their families.
Anyone
Anyone
(800) 955-4572
Available weekdays
9:00am - 6:00pm
(Eastern Time)
Provides scientific, clinical, and caregiver information on Lewy Body Dementia and offers phone and email helplines for caregivers.
Anyone
Anyone
(800) 539-9767
Offers a national toll-free helpline, online forum, and a support group directory.
Anyone
Anyone
(888) MSFOCUS
(888) 673-6287
9:00am - 7:00pm
(Eastern Time)
Provides information and support for brain tumor patients, family members, and healthcare professionals regarding treatment options and community resources. It also offers a range of opportunities to connect with other patients or caregivers through the Internet, by phone or in-person.
Anyone
Anyone
(800) 934-2873
Provides information about brain tumors and caregiver support services to patients and families. Offers one-to-one support over the phone or email regarding decisions for treatment. Also offers a list of support groups located throughout the United States and Canada.
Anyone
Anyone
(800) 770-TBTS
(800-770-8287)
An information service of the National Institute of Diabetes and Digestive and Kidney Diseases, the clearinghouse responds to inquiries about diabetes, provides referrals to health professionals, and offers publications about diabetes.
Anyone
Anyone
(800) 860-8747
Supports families affected by Kidney disease and advocates for the increase of all organs for transplantation. Also, provides current news, resources, and comprehensive information about kidney disease, connection to journals and newsletters, and zip code search to find local kidney organization.
Anyone
Anyone
(800) 622-9010
Promotes research, provides education about the disease, and organizes a wide range of programs for people newly diagnosed with MS or those living with the disease over time.
Anyone
Anyone
(800) 344-4867
See website for local chapter information
Provides information about rare diseases, referrals to patient organizations, advocacy for the rare-disease community, and Medication Assistance Programs that help patients obtain certain drugs they could not otherwise afford.
Anyone
Anyone
(800) 999-6673
*Voice mail Only
Serves as an on-line educational and support community for persons in pain and their families. Also offers an online database of pain care providers that is searchable by name, specialty, location, pain condition, and/or treatment options.
Anyone
Anyone
See website for local contact information
Provides information and resources to stroke survivors and their families including stroke support groups and a recovery guide.
Anyone
Anyone
(800) STROKES
(800) 787-6537
Provides a toll-free line and an online resource center to answer questions regarding Parkinson's disease.
Anyone
Anyone
(800) 457-6676
Provides up-to-date information about research on the treatment, care, diagnosis of Huntington's Disease. Also offers online support group and chatroom.
Anyone
Anyone
___
Resources on Living Arrangements for Care Recipients
An online search for housing providers (both for-profit and non-profit operators), including:
- Senior apartments
- Independent living communities
- Assisted living residences
- Continuing care retirement communities
Anyone
Anyone
(202) 237-0900
Online guide for selecting an assisted living facility, retirement community, or other personal care facility.
Anyone
___
(866) 906-4033
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community. Caring.com's content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Anyone, but their focus is primarily on the family caregiver caring for 50+
Anyone, but their focus is primarily on the family caregiver caring for 50+
Talk to a Family Adviser for free: (866) 824-8174
Online resource provides consumers with information, industry updates, research, and links to other assisted living resources as well as a message board to submit questions and concerns for personalized assistance.
Anyone
Anyone
(32) 212-9036
Provides information about end-of-life care. Its website includes a Locate a Hospice search which allows the user to search for hospice and palliative care programs, and a Caregiver's Corner that offers publications and tips on caregiving for persons near the end-of-life.
Anyone
Anyone
(800) 854-3402
or
(202) 457-5811
Offers an online Homes and Services Directory which includes:
- Adult day services
- Home health care
- Senior housing
- Assisted living facilities
- Continuing care retirement communities
- Nursing homes
Anyone
Anyone
General: (202) 783-2242
See website for local contact information
Online Agency Locator helps consumers to find and choose a home care provider in their state and local area to match their specific needs. Database consists of NAHC members, more than 20,000 home care and hospice agencies.
Anyone
Anyone
(202) 547-7424
See website for local contact information
This division of the American Health Care Association, a private company, offers an online resource that provides consumers with information on nursing homes, assisted living/residential care and other types of long term care.
Anyone
Anyone
(202) 842-4444
Provides information about end-of-life care. Its online Find a Provider search allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.
Anyone
Anyone
(800) 658-8898
HelpLine in Spanish:
(877) 658-8896
An online resource that defines the role of a long-term care ombudsman and how he/she can help families of nursing home residents. It also includes a state-by-state directory of long-term care ombudsmen.
Anyone
Anyone
(202) 332-2275
An online government resource that provides information about the past performance of every Medicare and Medicaid certified nursing home in the country.
Anyone
Anyone
(800) MEDICAR
(800) 633-4227
Provides a searchable database of over 5,000 nonprofit senior housing, assisted living facilities and retirement communities by state and county. Housing options and levels of care are described.
Anyone
Anyone
__
Offers consumers, families and advocates resources and information on long-term care including; an overview of each state's nursing home system and licensing agencies, and a consumer's guide to choosing a nursing home.
Anyone
Anyone
(202) 332-2275
General Information & Assistance
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program's mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
N/A
N/A
Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.
For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community. Caring.com's content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Anyone, but their focus is primarily on the family caregiver caring for 50+
Anyone, but their focus is primarily on the family caregiver caring for 50+
Talk to a Family Adviser for free: (866) 824-8174
Government site links to information and resources on a wide range of disability related topics, such as: benefits, civil rights, community services, health services and more. The site includes a state and local resources map which allows the user to locate disability related information/services in their area.
Anyone
Anyone
___
Links older adults and their family members to state and local area agencies on aging (AAAs) and community-based organizations that help older adults remain at home and in the community. AAAs offer:
- Information and Assistance
- Care Management
- Nutrition Services (i.e., Meals on Wheels)
- Legal Assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)
Anyone age 60 or older.
Anyone
(800) 677-1116
Eldercare hotline is available weekdays
9:00am-8:00pm
(Eastern Time)
Spanish-speaking information specialists are available
Offers a national telephone hotline, online resources and printed publications which serve as a central source of information and assistance to family caregivers in every state.
Anyone
Anyone
(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)
Online resource developed by the U.S. Department of Health and Human Services that provides information on services and financing options for future long-term care needs.
Anyone
Anyone
__
Provides primary care, specialized care, and related minor medical and social support services to U.S. veterans, service members and their families. VA benefits and services include:
- Compensation
- Pension
- Health Care
- Vocational Rehabilitation and Employment
- Education and Training
- Home Loans
- Life Insurance
- Dependents and Survivors
- Burial
- A veteran OR
- An active duty military service member OR
- A member of the Reserve or National Guard OR
Post - 9/11 (2011)
__Services for caregivers of post 9/11 veterans call the hotline at: 1-855-260-3274 (The criteria will be different times/wars served to access the numerous caregiver benefits under the new law).
Information and Assistance (800) 827-1000
Caregiver Support Line: (855) 260-3274
Family Caregiver Organizations
The Caregiver Action Network—formerly the National Family Caregivers Association (NFCA)—is a grassroots membership organization for family caregivers. It supports family caregivers through education, information, referral services, and advocacy.
Anyone
Anyone
(202) 454-3970
Information and support for caregivers as they care for aging parents, spouses, and other loved ones 50+. They provide articles, helpful tools, a comprehensive local directory of caregiving services, and the collective wisdom of an involved community. Caring.com's content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Anyone, but their focus is primarily on the family caregiver caring for 50+
Anyone, but their focus is primarily on the family caregiver caring for 50+
Talk to a Family Adviser for free: (866) 824-8174
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California's Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.
Anyone
Anyone
(800) 445-8106
Available weekdays
9:00am - 5:00pm
(Pacific Time)
This organization offers educational programs, connective social activities, emotional support, and inter-generational programming designed to help you navigate through your community's continuum of care. Designed to ensure families have access to new, supportive settings created for the purpose of educating, empowering and energizing.
Anyone
Anyone
(888) 655-3392 (888 OK LEEZA)
In Illinois:
(815) 741-0077
In Florida:
(954) 883-7240
In California:
Sherman Oaks (818) 817-3259
Los Angeles (323) 932-5414
Coalition of organizations focused on family caregiving issues. Conducts research, policy analysis and develops national programs to increase public awareness of family caregiving issues.
Anyone
Anyone
__
The National Volunteer Caregiving Network (NVCN) provides technical assistance, educational webinars, national conferences, information and referral, and mentorship, among other benefits for member organizations. Membership is open to any organization or individual who can realize benefits. Interfaith volunteer caregiving is based on the belief that people of ALL faiths include a tenet to help their neighbors by putting their faith into action.
Eligibility varies by program (see website)
anyone
304-907-0428 (note: only give this number if they absolutely do not have access to a computer)
Hosted by Georgia Southwestern State University and provides information on caregiver programs, education and training, a community forum, publications and current events in caregiving for family and professional caregivers.
Anyone
Anyone
(229) 928-1234
A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country.
__
Any spouse or partner caring for someone who is chronically ill or disabled.
(800) 838-0879
Check Support Groups, Contacts list under Find Caregiver Support on website for local offices