Family Care Navigator

General Information & Assistance

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program's mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility:

N/A

Caregiver Eligibility:

N/A

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

See website for local numbers

Services & Policies for Family Caregivers

FCSP services for family caregivers are provided through local Caregiver Resource Centers (CRCs) and include:
- Information
- Assistance
- Individual counseling, support groups and caregiver training
- Respite care
- Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility:

- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

- Adults age 18 and older caring for someone who meets care receiver eligibility
Special Populations:
- Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities
- Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Senior Helpline Within Illinois: (800) 252-8966

TTY:(888) 206-1327

Also, see website for local numbers

Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.

Caregiver Eligibility:

Anyone caring for someone who meets care receiver eligibility criteria

(773) 205-3627

State System of Home and Community-Based Services (HCBS)

 
Caregiver Assessment in Medicaid HCBS Waiver Program Yes
At Least One State Program with Consumer-Directed Option for Family Caregivers Yes
Lifespan Respite Grant No
State Respite Coalition Yes

 

Workplace Benefits for Family Caregivers

 
Paid Family Leave No
Unemployment Insurance for Family Caregivers No
Paid Sick Days No
Preemptive Law Prohibiting local Governments from Establishing the Right Sick Leave No

 

Miscellaneous Statewide Programs, Regulations and Legislation

 
State Alzheimer’s Plan Yes
Uniform Adult Guardianship and Protective Proceedings Jurisdiction (UAGPPJA) Yes
State Policy Permitting Delegation of 16 Nursing Tasks No
CARE Act*

Yes

* The Caregiver Advise, Record, Enable (CARE) Act enables family caregivers to provide safe and effective home care to older adults. In particular, it supports family caregivers when their loved ones are admitted to the hospital, and helps them to learn how to safely provide care at home once their loved ones are discharged from a medical facility.

While the finer points of the CARE Act vary from state to state, it contains three central provisions in every version nationwide:

  1. The name of the family caregiver is recorded when a loved one is admitted into a hospital or rehabilitation facility.
  2. The family caregiver is notified if the loved one is to be discharged to another facility or back home.
  3. The hospital or rehabilitation facility must provide an explanation and live instruction of the medical tasks—such as medication management, injections, wound care, and transfers—that the family caregiver will perform at home.

Services for Care Recipients Living at Home

Statewide program assists people with disabilities obtain assistive devices and remain independent in their community by providing services including:
- Information and referral
- Option to borrow assistive technologies for a limited period of time
- Assistive technology demonstrations
- Low interest rate loans for purchase of assistive technology devices

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

___

Within Illinois, call: (800) 852-5110
(Voice/TTY)

Outside Illinois, call: (217) 522-7985
TTY: (217) 522-9966

Association of long term care providers matches ethnic consumers with care provider of similar cultural backgrounds.

*Only available in Chicago.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(312) 461-0812

Government program assists low income older adults who require help with activities of daily living by helping to pay for home and community based services including:
- Care management
- In-home care
- Adult day are
- Transportation
- Home delivered meals

Care Recipient Eligibility:

Multiple requirements:
- Adults age 60 or older
- Require help with activities of daily living
- Low income

*Depending on income the service is available on a sliding scale

Caregiver Eligibility:

___

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

Assists residents of Illinois with disabilities to obtain and retain employment. It provides information and referral services for independent living.

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

(800) 843-6154
(Voice/English/Español)

TTY: (800) 447-6404

Government program assists Medicaid eligible older adults who require nursing level of care remain in the community by helping to pay for home and community based services including:
- In-home care
- Adult day are
- Emergency home response

Care Recipient Eligibility:

Multiple requirements:
- Adults age 60 or older
- Require nursing level of care
- Low income (Medicaid eligible)

Caregiver Eligibility:

___

(800) 843-6154
TTY: (800) 447-6404

Association of adult day care providers offers online directory that allows consumers to locate adult day care providers in their community. Database consists of member providers of IADSA.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(773) 202-4130

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

See website for local numbers

Government program assists older and low income adults with disabilities pay for prescription medication.

Care Recipient Eligibility:

Multiple requirements:
- Individuals with any type of disabilities age 16 or older
OR
- Adults age 65 or older
- Low income

*Adults age 65 or older do not have to be low income to receive services.

Caregiver Eligibility:

___

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

Association of in-home care providers offers online directory that allows consumers to locate in-home care providers in their community. Database consists of member providers of IHCC.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(217) 753-4422

Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(847) 441-7200

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
- Information and referral
- Peer counseling
- Care management
- Independent living skills training
- Individual and systems change advocacy
- Benefits counseling
- Employment readiness training
- Housing referrals
- Assistive technology services
- Legal aid

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

___

Within Illinois, call: (800) 587-1227
(Voice/TTY)

Outside Illinois, call: (217) 525-1308
(Voice/TTY)

Government program assists Medicaid eligible individuals who have a diagnosis of traumatic brain injury (TBI) who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
- In-home care
- Adult day are
- Respite
- Skilled nursing services
- Physical, occupational and speech therapies
- Personal emergency response system
- Home adaptations
- Specialized medical equipment and supplies
- Home delivered meals
- Day habilitation
- Prevocational services

Care Recipient Eligibility:

Multiple requirements:
- Individuals of any age with a diagnosis of TBI
- Require nursing level of care
- Low income (Medicaid eligible)

Caregiver Eligibility:

___

(800) 843-6154
TTY: (800) 447-6404

Government program assists Medicaid eligible individuals age 59 or younger who require nursing level of care remain independent in their own homes by helping to pay for home and community based services including:
- In-home care
- Adult day are
- Respite
- Skilled nursing services
- Physical, occupational and speech therapies
- Personal emergency response system
- Home adaptations
- Specialized medical equipment and supplies
- Home delivered meals

Care Recipient Eligibility:

Multiple requirements:
- Individuals age 59 or younger with any type of disability
- Require nursing level of care
- Low income (Medicaid eligible)

Caregiver Eligibility:

___

(800) 843-6154
TTY: (800) 447-6404

Resources on Living Arrangements for Care Recipients

Government program offers counseling on housing options for older adults and their families.

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

Association of long term care providers matches ethnic consumers with care provider of similar cultural backgrounds.

*Only available in Chicago.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(312) 461-0812

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

See website for local numbers

Government program assists older and low income adults with disabilities pay for prescription medication.

Care Recipient Eligibility:

Multiple requirements:
- Individuals with any type of disabilities age 16 or older
OR
- Adults age 65 or older
- Low income

*Adults age 65 or older do not have to be low income to receive services.

Caregiver Eligibility:

___

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

Association of nursing homes and rehabilitation centers in Illinois. Its website offers a search tool which allows the user to search for nursing homes and rehabilitation centers by city, county or zip code.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(773) 478-6613

Provides information and referral services for hospice and palliative care in Illinois. Its website provides a search tool that allows user to locate hospice programs in their communities.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(847) 441-7200

Government website provides information on nursing homes in Illinois. Its website offers a search tool which allows the user to search for licensed nursing homes by city, county or zip code and facility name.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Nursing Home Hotline
(800) 252-4343

Government program assists low income adults living in assisted living facilities delay placement into a nursing home by providing the following services:
- In-home care
- Emergency home response
- Social/recreational programming
- Transportation
- Supplemental services

Care Recipient Eligibility:

Multiple requirements:
- Adults age 22 or older with any type of disability
- Require nursing level of care
- Low income

*Depending on income the service is available on a sliding scale

Caregiver Eligibility:

___

(800) 843-6154
TTY: (800) 447-6404

Government Health & Disability Programs

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

See website for local numbers

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans' benefits to the federal government.

Care Recipient Eligibility:

Veterans who are residents of Illinois

Caregiver Eligibility:

Family members of a veteran

Within Illinois, call: (800) 437-9824

Outside Illinois, call: (217) 782-6641
TTY: (217) 524-4645

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility:

Must be low-income - based on specific government criteria

Caregiver Eligibility:

___

(217) 782-1200
TTY: (800) 526-5812

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

To contact SHIP, please call (800) 548-9034 or email [email protected].

Legal Help & Advocacy

Provides criminal and civil legal services in various programs: Criminal records, criminal defense, family law, housing law, and client support services. 

(312) 738-2452

CDEL is a Chicago area pro bono law firm that provides direct legal services to low-income seniors and persons with disabilities. CDEL volunteer attorneys represent clients in civil legal areas, including adult guardianship, real estate, landlord/tenant, dissolution of marriage, simple wills, powers of attorney, consumer fraud, collection defense and financial elder abuse.

(312) 376-1885

Government program advocates for the legal rights of people with disabilities. Services include:
- Information and referral
- Legal advocacy (limited representation)
- Education

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

Anyone

(800) 641-3929 (Voice/TTY)

Provides free legal services to residents in Cook County. Areas of law include: Housing, employment, education, consumer debt, divorce, guardianships, estates, injuries to person or property, public benefits, and health care. 

(312) 738-9200

Non-profit organization advocates on behalf of individuals with disabilities by providing services including:
- Information and referral
- Legal advocacy (limited representation)
- Education/Self-advocacy training

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

Anyone

Within Illinois, call: (800) 537-2632
TTY: (800) 610-2779

Outside Illinois, call: (312) 341-0022

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

See website for local numbers

Association for the rights of residents of nursing homes. Its website contains information on quality of care and tips on how to choose a facility.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(312) 663-5120

Provides free legal representation and investigation services for persons with disabilities. 

(618) 474-5503

Provides free civil legal help for low income and senior citizens in Southern Illinois. Topics covered include problems regarding: housing, family, consumer, homeownership, public benefits and health, senior and disabled services, education. 

(618) 398-0574

Provides a range of legal services in the five main areas of law: Children & families, consumer, housing, immigrant & workers' rights, public benefits. 

(312) 341-1070

Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.

Care Recipient Eligibility:

Resident in a long-term care facility

Caregiver Eligibility:

Anyone

Senior Helpline
Within Illinois, call: (800) 252-8966
TTY:(888) 206-1327

Outside Illinois, call: (217) 524-6911

Protective services for Adults assist vulnerable older adults to stop and prevent abuse, neglect, or exploitation. Anyone can make a report about suspected abuse to the Hotline.

Care Recipient Eligibility:

Adults age 60 or older

Caregiver Eligibility:

Anyone

Elder Abuse Hotline: (866) 800-1409
TTY: (800) 544-5304
TTY: (888) 206-1327

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

To contact SHIP, please call (800) 548-9034 or email [email protected].

Government program offers free legal consultation and representation to older adults, residents of Illinois.

Care Recipient Eligibility:

Adults age 60 or older

Caregiver Eligibility:

___

See website for local legal services contact information

Disease-Specific Organizations

Supports individuals with ALS and their families by providing the following services:
- Information and referral
- In-home care
- Respite
- Support groups
- Educational programs

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Outside Illinois, call: (847) 679-3311

Within Illinois, call: (888) ALS-1107
(1-888-257-1107)