Family Care Navigator

General Information & Assistance

Statewide government website offers an online search tool to help users locate aging and disability services in Massachusetts including:
- Home and community based services
- Nursing home facilities
- Transportation
- Legal assistance
- Support groups
- Hospice

(This list is not exhaustive, please visit website for information on more services)

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(800) AGE INFO
(1-800-243-4636)
TTY: (800) 872-0166

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program's mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility:

N/A

Caregiver Eligibility:

N/A

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

*Some AAAs are also known as Aging Service Access Points (ASAP's).

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(508) 852-5539
(800) 244-3032

Disease-Specific Organizations

Supports individuals and families affected by ALS by providing financial assistance for the following services:
- Family vacations
- Respite
- College scholarships for children of a parent who has a diagnosis of ALS

*Priority is given to low income families.

Care Recipient Eligibility:

Adults with a diagnosis of ALS

Caregiver Eligibility:

Family members of individuals with a diagnosis of ALS

(508) 759-9696

Non-profit organization assists individuals with traumatic brain injury by providing services including:
- Care management
- Cognitive rehabilitation/remediation
- Independent living skills training
- Functional assessments (vocational rehabilitation services and community living)
- Rehabilitation counseling
- Academic support
- Leisure/recreational activities
- Family support groups

Care Recipient Eligibility:

Diagnosis of Traumatic Brain Injury

Caregiver Eligibility:

Family members of individuals with a diagnosis of Traumatic Brain Injury

(413) 572-4132

Legal Help & Advocacy

Free and low cost legal services for those with disabilities.

(413) 586-6024

Government program advocates for the legal rights of people with disabilities and mental illness. Services include:
- Information and referral
- Legal advocacy
- Limited legal representation
- Education

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

Anyone

Toll Free:
(800) 322-2020
or
(617) 727-7440

Free civil legal services to low income and elderly residents of south and central MA.

(855) 252-5342

Free and low cost legal and counseling services in the following areas of law: Immigration, family, housing, disability, and interdisciplinary services. 

(617) 661-1010

 

Provides free civil legal services to low income residents of Essex County. Assistance with: housing, child and family law, benefits, veterans assistance.

If you need legal advice and qualify for free legal services from ECLAA, visit the ECLAA office in Room 118 at the Newark Hall of Records, 465 Dr. Martin Luther King Jr. Boulevard, Newark, NJ 07102. ECLAA cannot provide legal advice by phone or online, only in person.

Low cost legal services for Boston residents, based on a sliding scale.

(617) 371-1234

Free legal hotline supporting low income residents of Massachusetts in various civil legal issues. Elder law division covers benefits and nursing home issues.  

(617) 603-1700

Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.

Care Recipient Eligibility:

Resident in a long-term care facility

Caregiver Eligibility:

Anyone

(617) 727-7750
(800) 243-4636 (nationwide)
(800) 872-0166 (TTY)

Providing free legal services and education in a variety of civil law issues.

Provides free civil legal aid to low income individuals in priority practice areas of: Family law, housing, homeless advocacy, government benefits, education, elder law, and immigration.

(800) 696-1501

Adult Protective Services assist vulnerable and elder adults to stop and prevent abuse, neglect, or exploitation. Anyone can make a report about suspected abuse to the Hotline.

Care Recipient Eligibility:

Adults age 60 or older and adults with disabilities

Caregiver Eligibility:

Anyone

(800) 922-2275

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

(800) AGE INFO
(1-800-243-4636)
TTY: (800) 872-0166

Chinese (Chinese Golden Age Center)
(617) 357-0226

Haitian Creole (Haitian American Public Health Initiative)
(617) 298-8076

Cape Verdean Creole (Immigrant Assistance Center)
(508) 996-8113

Khmer (Seton Asian Center)
(978) 683-7316

Portuguese (Immigrant Assistance Center)
(508) 996-8113

Spanish (Lawrence Council on Aging)
(978) 794-5886

Vietnamese (Vietnamese American Civic Association)
(617) 288-7344

Provides free civil legal services to low -income and elderly residents of southeastern Massachusetts.

(800) 244-9023

Services for Care Recipients Living at Home

Government program assists adults who are frail and at risk of nursing home placement remain in their own homes by helping to pay for home and community based services including:
- In-home care
- Skilled nursing
- Respite
- Home delivered meals
- Transportation
Also, assists residents of nursing homes return to the community, if they are able to do so safely, by managing the transition and providing the appropriate community based services.

Care Recipient Eligibility:

Multiple requirements:
- Adults age 60 or older
- Low income (MassHealth/Medicaid beneficiary)
- Require nursing level of care
- Low income

Caregiver Eligibility:

____

(800) AGE INFO
(1-800-243-4636)
TTY: (800) 872-0166

Association of in-home care providers. Its website offers a search tool which allows users to search for in-home care providers by town, region and type of service. Database consists of over 130 providers that are members of HCAM.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(617) 482-8830

The Executive Office of Elder Affairs provides Home Care services to 45,000 elders each month. Twenty seven local Aging Services Access Points (ASAPs) provide interdisciplinary case management and contract with agencies and organizations to provide the following services:

Homemaker

Supportive Day Care

Adult Day Health

Supportive Home Care Aide

Laundry Service

Personal Emergency Response

Adaptive Housing/Equipment

Companion

Medication Dispensing System

Personal Care

Dementia Day Care

Home Health Services

Home Delivered Meals

Emergency Shelter

Transportation

Grocery Shopping/Delivery

Chore

Wanderer Locator

Vision Rehabilitation

Respite

Alzheimer’s / Dementia Coaching

Behavioral Health Counseling

Nutritional Assessment

Home Based Wandering Response Systems

Home Delivery of Pre-Packaged Medication

Enhanced PERS

Transitional Assistance

Translation/Interpreting Service

Money Management

Care Recipient Eligibility:

60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need of respite services.

Caregiver Eligibility:

___

800 AGE INFO (1-800-243-4636)
TTY: (800) 872-0166

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs by location, service provider, or services offered. Database consists of providers that are members of the Hospice and Palliative Care Federation.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Within Massachusetts, call: (800) 962-2973

Outside Massachusetts, call: (781) 255-7077

A network of 30 statewide non-profit organizations offering in-home care. It's website includes a search tool which allows consumers to locate programs in their communities.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(978) 502-3794

Website provides information about adult day services. Also provides a map of member providers of MADSA which allows consumers to locate adult day services in their community.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(800) 382-7305
Extension 3047

(617) 325-0345

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
- Information and referral
- Peer counseling
- Care management
- Independent living skills training
- Individual and systems change advocacy
- Benefits counseling
- Employment readiness training
- Housing referrals
- Assistive technology services
- Legal aid

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

___

(866) 662-7452 (Within Massachusetts)
(508) 620-7452 (Outside Massachusetts)

Statewide program assists people with disabilities obtain assistive devices and remain independent in their community. Services include:
- Information and referral
- Assistive technology training
- Assistance locating funds for the purchase of Assistive Technology

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

Within Massachusetts, call: (866) 682-9955

Outside Massachusetts, call: (617) 204-3851

Montachusett Home Care offers information, educations, respite and support groups to family caregivers who are residents of North Central Massachusettts.

Care Recipient Eligibility:

- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

Eligible individuals are family members caring for an older adult at least age 60, any family member caring for someone with Alzheimer's Disease no matter what age, any grandparent or other relative at least age55+ caring for a young child 18 or younger, and any caregiver age 60+ caring for a disabled adult who is not their own child

1-800-734-7312

Six PACE programs in Massachusetts coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
- Adult day health care
- Medical care
- Home health care and personal care
- All necessary prescription drugs
- Social services
- Respite
- Hospital and nursing home care when necessary

Care Recipient Eligibility:

Multiple requirements:
- Adults age 55 or older
- Certified or certifiable for placement in a nursing facility
- Live within a site's service area and able to live safely in the community at time of enrollment

* If not eligible for Medicare and/or Medicaid, private payment is accepted
*Space is limited

Caregiver Eligibility:

___

Summit ElderCare
Worcester
(800) 698-7566
TTY: (800) 899-4196

Elder Service Plan of East Boston Neighborhood Health Center
East Boston
(617) 569-5800

Elder Service Plan of the North Shore
Lynn
(781) 715-6608

Upham's Elder Service Plan
Dorchester
(617) 825-9206

Elder Service Plan of Harbor Health Services, Inc.
Dorchester
(617) 533-2400

Elder Service Plan of the Cambridge Health Alliance
Cambridge
(617) 665-2300

adults and people with disabilities hire personal care assistants (PCAs) and direct care workers. Also provides a free resource for workers who are interested to find jobs as PCAs. Rewarding Work presently operates in Connecticut, Massachusetts, Rhode Island, New Jersey and Vermont.

Care Recipient Eligibility:

Older adults and adults with disabilities

Caregiver Eligibility:

___

(866) 211 9675

This state department helps residents of Massachusetts with disabilities to obtain and retain employment. It provides information and referral services for independent living.

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

Within Massachusetts, call: (800) 245-6543
(Voice/TTY)

Outside Massachusetts, call: (617) 204-3600

Government Health & Disability Programs

Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.

Care Recipient Eligibility:

Resident in a long-term care facility

Caregiver Eligibility:

Anyone

(617) 727-7750
(800) 243-4636 (nationwide)
(800) 872-0166 (TTY)

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

*Some AAAs are also known as Aging Service Access Points (ASAP's).

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(508) 852-5539
(800) 244-3032

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans' benefits to the federal government.

Care Recipient Eligibility:

Veterans who are residents of Massachusetts

Caregiver Eligibility:

Family members of a veteran

(800) 827-1000
(617) 210-5480

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility:

Must be low-income - based on specific government criteria

Caregiver Eligibility:

____

Information: (888) 665-9993
TTY: (888) 665-9997

Customer service: (800) 841-2900
TTY: (800) 497-4648

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

(800) AGE INFO
(1-800-243-4636)
TTY: (800) 872-0166

Chinese (Chinese Golden Age Center)
(617) 357-0226

Haitian Creole (Haitian American Public Health Initiative)
(617) 298-8076

Cape Verdean Creole (Immigrant Assistance Center)
(508) 996-8113

Khmer (Seton Asian Center)
(978) 683-7316

Portuguese (Immigrant Assistance Center)
(508) 996-8113

Spanish (Lawrence Council on Aging)
(978) 794-5886

Vietnamese (Vietnamese American Civic Association)
(617) 288-7344

Resources on Living Arrangements for Care Recipients

Government agency responsible for health issues in the state of Massachusetts including inspecting and licensing long-term care providers. Its website provides an online directory of nursing homes in Massachusetts and includes tips on how to choose a nursing home.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(866) 627-7968
(617) 753-8000

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs by location, service provider, or services offered. Database consists of providers that are members of the Hospice and Palliative Care Federation.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Within Massachusetts, call: (800) 962-2973

Outside Massachusetts, call: (781) 255-7077

Long term care provider organization representing skilled nursing facilities, assisted living residences and continuing care retirement communities in Massachusetts. Its website offers a search tool which allows the user to search for nursing homes and assisted living facilities by county, zip code and provider type. Database consists of providers that are members of MECF.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(800) CARE-FOR
(1-800-227 3367)

(617) 558-0202

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

*Some AAAs are also known as Aging Service Access Points (ASAP's).

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(508) 852-5539
(800) 244-3032

Services & Policies for Family Caregivers

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
- Information
- Assistance
- Individual counseling, support groups and caregiver training
- Respite care
- Limited supplemental services, such as transportation and home modifications

*Some AAAs are also known as Aging Service Access Points (ASAP's).

Care Recipient Eligibility:

- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

- Adults age 18 and older caring for someone who meets care receiver eligibility
Special Populations:
- Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities
- Grandparents or other relatives age 55 or older caring for children (age 18 and under)

(800) AGE INFO
(1-800-243-4636)
TTY: (800) 872-0166

Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.

Caregiver Eligibility:

Anyone caring for someone who meets care receiver eligibility criteria

(508) 507-6572

Montachusett Home Care offers information, educations, respite and support groups to family caregivers who are residents of North Central Massachusettts.

Care Recipient Eligibility:

- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

Eligible individuals are family members caring for an older adult at least age 60, any family member caring for someone with Alzheimer's Disease no matter what age, any grandparent or other relative at least age55+ caring for a young child 18 or younger, and any caregiver age 60+ caring for a disabled adult who is not their own child

1-800-734-7312

State System of Home and Community-Based Services (HCBS)

 
Caregiver Assessment in Medicaid HCBS Waiver Program Yes
At Least One State Program with Consumer-Directed Option for Family Caregivers Yes
Lifespan Respite Grant Yes
State Respite Coalition Yes

 

Workplace Benefits for Family Caregivers

 
Paid Family Leave No
Unemployment Insurance for Family Caregivers Yes
Paid Sick Days Yes
Preemptive Law Prohibiting local Governments from Establishing the Right Sick Leave No

 

Miscellaneous Statewide Programs, Regulations and Legislation

 
State Alzheimer’s Plan Yes
Uniform Adult Guardianship and Protective Proceedings Jurisdiction (UAGPPJA) Yes
State Policy Permitting Delegation of 16 Nursing Tasks No
CARE Act*

No

* The Caregiver Advise, Record, Enable (CARE) Act enables family caregivers to provide safe and effective home care to older adults. In particular, it supports family caregivers when their loved ones are admitted to the hospital, and helps them to learn how to safely provide care at home once their loved ones are discharged from a medical facility.

While the finer points of the CARE Act vary from state to state, it contains three central provisions in every version nationwide:

  1. The name of the family caregiver is recorded when a loved one is admitted into a hospital or rehabilitation facility.
  2. The family caregiver is notified if the loved one is to be discharged to another facility or back home.
  3. The hospital or rehabilitation facility must provide an explanation and live instruction of the medical tasks—such as medication management, injections, wound care, and transfers—that the family caregiver will perform at home.