Family Care Navigator

General Information & Assistance

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program's mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility:

N/A

Caregiver Eligibility:

N/A

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Extends and improves quality time at home for families caring for a loved one with memory loss, dementia, or Alzheimer's disease. Their services provide in-home support, training, education, and access to resources, for caregivers of people suffering from dementia.

Care Recipient Eligibility:

Individuals with memory loss or issue, Dementia, or Alzheimer's disease.

Caregiver Eligibility:

Anyone

(314) 645-6247 Mon.-Fri., 8:30 a.m. - 5:00 p.m.
Serves the following areas: St. Louis City, St. Louis County, St. Charles, and Jefferson County. Also serves St. Clair and Madison Counties in Illinois.

Government website offers an online search tool to help consumers locate aging and disability services including:
- Long-term care facilities
- Home and community based services
- Transportation
- Legal assistance
- Respite
- Hospice

(This list is not exhaustive, please visit website for information on more services)

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Within Missouri, call: (800) 497-0822

Outside Missouri, call: (417) 862-0762

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(573) 619-6185

Services & Policies for Family Caregivers

The DMV is required to investigate reports received from law enforcement, family, and medical professionals of unsafe drivers. These reports are used to determine if the driver needs a re-examination of driving skills or written testing, or medical or psychological evaluation. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(573) 526-2407

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
- Information
- Assistance
- Individual counseling, support groups and caregiver training
- Respite care
- Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility:

- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

- Adults age 18 and older caring for someone who meets care receiver eligibility
Special Populations:
- Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities
- Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Extends and improves quality time at home for families caring for a loved one with memory loss, dementia, or Alzheimer's disease. Their services provide in-home support, training, education, and access to resources, for caregivers of people suffering from dementia.

Care Recipient Eligibility:

Individuals with memory loss or issue, Dementia, or Alzheimer's disease.

Caregiver Eligibility:

Anyone

(314) 645-6247 Mon.-Fri., 8:30 a.m. - 5:00 p.m.
Serves the following areas: St. Louis City, St. Louis County, St. Charles, and Jefferson County. Also serves St. Clair and Madison Counties in Illinois.

Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.

Caregiver Eligibility:

Anyone caring for someone who meets care receiver eligibility criteria

(660) 973-6408

State System of Home and Community-Based Services (HCBS)

 
Caregiver Assessment in Medicaid HCBS Waiver Program Yes
At Least One State Program with Consumer-Directed Option for Family Caregivers Yes
Lifespan Respite Grant Yes
State Respite Coalition Yes

 

Workplace Benefits for Family Caregivers

 
Paid Family Leave No
Unemployment Insurance for Family Caregivers No
Paid Sick Days No
Preemptive Law Prohibiting local Governments from Establishing the Right Sick Leave No

 

Miscellaneous Statewide Programs, Regulations and Legislation

 
State Alzheimer’s Plan Yes
Uniform Adult Guardianship and Protective Proceedings Jurisdiction (UAGPPJA) Yes
State Policy Permitting Delegation of 16 Nursing Tasks No
CARE Act*

Yes

* The Caregiver Advise, Record, Enable (CARE) Act enables family caregivers to provide safe and effective home care to older adults. In particular, it supports family caregivers when their loved ones are admitted to the hospital, and helps them to learn how to safely provide care at home once their loved ones are discharged from a medical facility.

While the finer points of the CARE Act vary from state to state, it contains three central provisions in every version nationwide:

  1. The name of the family caregiver is recorded when a loved one is admitted into a hospital or rehabilitation facility.
  2. The family caregiver is notified if the loved one is to be discharged to another facility or back home.
  3. The hospital or rehabilitation facility must provide an explanation and live instruction of the medical tasks—such as medication management, injections, wound care, and transfers—that the family caregiver will perform at home.

Services for Care Recipients Living at Home

Assists people with disabilities to obtain and retain employment. It provides information and referral services and access to assistive technology that supports independence.

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

Within Missouri, call: (877) 222-8963
TTY: (573) 751-0881

Outside Missouri, call: (573) 751-3251

Association of in-home care providers. Its website contains a directory which allows consumers to locate in-home care providers in their community. All providers are members of the Missouri council for In-Home Services.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(573) 634-5272

Government website provides listings of licensed adult day care centers in Missouri.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(573) 526-8524

Extends and improves quality time at home for families caring for a loved one with memory loss, dementia, or Alzheimer's disease. Their services provide in-home support, training, education, and access to resources, for caregivers of people suffering from dementia.

Care Recipient Eligibility:

Individuals with memory loss or issue, Dementia, or Alzheimer's disease.

Caregiver Eligibility:

Anyone

(314) 645-6247 Mon.-Fri., 8:30 a.m. - 5:00 p.m.
Serves the following areas: St. Louis City, St. Louis County, St. Charles, and Jefferson County. Also serves St. Clair and Madison Counties in Illinois.

Association of adult day care providers. Its website provides a map of member providers of MoADSA which allows consumers to locate adult day services in their community.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(573) 634-3566

Alliance of in-home care providers. Its website provides information about in-home care. Also offers a directory of member providers of MAHC which allows consumers to locate in-home care providers in their community.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(573) 634-7772

Statewide program assists people with disabilities obtain assistive devices and remain independent in their community. Services include:
- Assistive technology training
- Assistive technology re-use program
- Option to borrow assistive technologies for a limited period of time
- Braille writing equipment repair

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

(816) 655-6700
TTY: (816) 655-6711

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(573) 619-6185

Government program assists low income adults who require help with activities of daily living remain in the community by helping to pay for home and community based services including:
- In-home care
- Adult day are
- Respite
Also, assists residents of nursing homes return to the community, if they are able to do so safely, by managing the transition and providing the appropriate community based services.

Care Recipient Eligibility:

Multiple requirements:
- Adults age 18 or older
- Require help with activities of daily living
- Low income (Medicaid eligible)

*Medicaid is called MO HealthNet in Missouri

Caregiver Eligibility:

___

866-835-3505

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs in their communities. Database consists of providers that are members of MHPCA.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(816) 524-9505
or
(573) 634-5514

Government program assists older adults and adults with disabilities pay for prescription medication. MoRx does not have an enrollment fee, deductible or monthly premium.

Care Recipient Eligibility:

Multiple requirements:
- Adults age 18 or older
- Medicare beneficiary
- Low income

Caregiver Eligibility:

___

(800) 375-1406

The state of Missouri partners with a network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
- Information and referral
- Peer counseling
- Care management
- Independent living skills training
- Individual and systems change advocacy
- Benefits counseling
- Employment readiness training
- Housing referrals
- Assistive technology services
- Legal aid

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

___

(877) 222-8963 (Within Missouri)
(573) 526-7039 (Outside Missouri)

Registry for direct care providers. Families and employers can call the registry's toll free number and request background information on potential individuals to hire or request licensure status information on licensed elder care providers, such as in-home care.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(866) 422-6872
(573) 526-1974

A PACE program in Missouri coordinate and provide the entire continuum of care and services to their older enrollees with chronic care needs to enable them to continue living safely in the community as long as possible. Care and services include:
- Adult day health care
- Medical care
- Home health care and personal care
- All necessary prescription drugs
- Social services
- Respite care
- Hospital and nursing home care when necessary

Care Recipient Eligibility:

Multiple requirements:
- Adults age 55 or older
- Certified or certifiable for placement in a nursing facility
- Live within a site's service area and able to live safely in the community at time of enrollment

* If not eligible for Medicare and/or Medicaid, private payment is accepted
*Space is limited

Caregiver Eligibility:

____

Alexian Brothers Community Services
St. Louis
(314) 771-5800

(This is the only PACE provider currently listed in MO.)

Resources on Living Arrangements for Care Recipients

Government website provides information on long term care facilities in Missouri, including nursing homes and intermediate care facilities. Offers a search tool which allows the user to search for licensed long term care facilities in Missouri by city, county or zip code.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(573) 619-6185

Provides online information about hospice and palliative care. Its website includes a search tool which allows users to locate hospice and palliative care programs in their communities. Database consists of providers that are members of MHPCA.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(816) 524-9505
or
(573) 634-5514

Government program assists older adults and adults with disabilities pay for prescription medication. MoRx does not have an enrollment fee, deductible or monthly premium.

Care Recipient Eligibility:

Multiple requirements:
- Adults age 18 or older
- Medicare beneficiary
- Low income

Caregiver Eligibility:

___

(800) 375-1406

Government Health & Disability Programs

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(573) 619-6185

Provides Missouri's aged or disabled veterans with rehabilitative, residential and medical care and services. Also helps veterans and their families to present claims for veterans' benefits to the federal government.

Care Recipient Eligibility:

Veterans who are residents of Missouri

Caregiver Eligibility:

Family members of a veteran

573-751-3779

Medicaid (called MO HealthNet in Missouri) is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility:

Must be low-income - based on specific government criteria

Caregiver Eligibility:

___

(573) 751-3425
TTY: (800) 735-2966

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

(800) 390-3330

Legal Help & Advocacy

Adult Protective Services assist vulnerable and elder adults to stop and prevent abuse, neglect, or exploitation. Anyone can make a report about suspected abuse to the Hotline.

Care Recipient Eligibility:

Adults age 60 or older and adults with disabilities

Caregiver Eligibility:

Anyone

(800) 392-0210

The Unit provides helplines for anyone to report complaints about in-home care, hospice or nursing home services.

Care Recipient Eligibility:

Anyone receiving hospice or in-home care or living in a nursing home

Caregiver Eligibility:

Anyone

(573) 751-6336

Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities.

Care Recipient Eligibility:

Resident in a long-term care facility

Caregiver Eligibility:

Anyone

Within Missouri, call: (800) 309-3282

Outside Missouri, call: (573) 526-0727

Provides a variety of free civil legal services to low income individuals. Elder law and POA for individuals age 60 years and over.  

(573) 634-4545

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Anyone age 60 or older

Caregiver Eligibility:

Anyone

(573) 619-6185

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

Anyone

(800) 390-3330

Disease-Specific Organizations

Government program offers help to adults with Traumatic Brain Injury by providing care management and rehabilitation services.

Care Recipient Eligibility:

Multiple requirements:
- Adults age 21 - 65
- Diagnosis of Traumatic Brain Injury

*Care management services do not have an income eligibility, but for rehabilitation services adults must be low income.

Caregiver Eligibility:

___

(800) 451-0669

The Greater Missouri Chapter provides educational programs and support groups for people living with Alzheimer's disease and other forms of dementia, caregivers, and health care professionals. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(800) 272-3900

The APDA provides people with Parkinson's, caregivers, family members, and medical professionals resources, support groups, exercise classes, and educational programs.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(636) 778-3377

Caregivers, survivors, and medical professionals are provided a wide range of services such as social, educational, and emotional support. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Missouri: (573) 446-3000 or (417) 520-5070

St. Louise (314)692-5635

Caregiver Compensation

This is a Medicaid (MO HealthNet) program that allows certain family members, excluding spouses and legal guardians, to be hired and paid to provide personal care services.

Care Recipient Eligibility:

-Must be a resident of Missouri

-Must be 18+

-Must be physically disabled

-Must require nursing facility level of care

-Must be able to self-direct their own care

-Must be Medicaid eligible

 

Caregiver Eligibility:

Anyone (excluding spouses)

Missouri Department of Social Services Family Support Division: 855-373-4636

Missouri's ILW is a Medicaid (MO HealthNet) program that assists disabled persons to remain living at home. This program allows certain family members, excluding spouses and legal guardians, to be hired and paid as the personal care provider. Other services include:

  • Environmental accessibility adaptations
  • Specialized medical equipment and supplies
  • Financial management 
  • Case management
Care Recipient Eligibility:

-Must be a resident of Missouri 

-Must be age 18-64 and physically disabled

-Must require nursing facility level of care

-Must be able to self-direct their own care

-Must be Medicaid eligible

 

Caregiver Eligibility:

Anyone (excluding spouses)

MO HealthNet Division: 573-751-3425