Family Care Navigator

Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.

Caregiver Eligibility:

Anyone caring for someone who meets care receiver eligibility criteria

(800) 376-2345

General Information & Assistance

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program's mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility:

N/A

Caregiver Eligibility:

N/A

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Provides information and access to long-term care support and services.

Care Recipient Eligibility:

Anyone age 60 and older or individuals with any type of disability

Caregiver Eligibility:

Anyone

1-877-222-3737

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Adults age 60 and older

Caregiver Eligibility:

Anyone

To be connected to your local AAA, call Toll Free Nationwide:
(877) 222-3737

Services & Policies for Family Caregivers

Online directory of caregiver support services, which can be searched by category. Includes a downloadable Pocket Guide to caregiver resources.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Toll Free in NJ: (800) 367-6543

Outside NJ: (609) 292-7837

Physicians are mandated to report patients with a diagnosed condition that may impair their ability to drive to the DMV. The DMV has the authority to investigate and reexamine an individual’s ability to operate a motor vehicle. The “Medical Review” forms are available HERE.

License renewal occurs every 4 years. 

(609) 292-6500

FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include:
- Information
- Assistance
- Individual counseling, support groups and caregiver training
- Respite care
- Limited supplemental services, such as transportation and home modifications

Care Recipient Eligibility:

- Must be a New Jersey resident
- Adults age 60 and older
Exception:
- Adults with dementia can be any age

Caregiver Eligibility:

- Adults age 18 and older caring for someone who meets care recipient eligibility
Special Populations:
- Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities
- Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Toll Free Nationwide:
(877) 222-3737

Offers a helpline and an online resource that help identify and locate support groups including information and materials on how to start your own support group in New Jersey.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Within NJ, call: (800) 367-6274

Outside NJ, call: (973) 571-4100

State System of Home and Community-Based Services (HCBS)

 
Caregiver Assessment in Medicaid HCBS Waiver Program Yes
At Least One State Program with Consumer-Directed Option for Family Caregivers Yes
Lifespan Respite Grant Yes
State Respite Coalition Yes

 

Workplace Benefits for Family Caregivers

 
Paid Family Leave Yes
Unemployment Insurance for Family Caregivers No
Paid Sick Days No
Preemptive Law Prohibiting local Governments from Establishing the Right Sick Leave No

 

Miscellaneous Statewide Programs, Regulations and Legislation

 
State Alzheimer’s Plan No
Uniform Adult Guardianship and Protective Proceedings Jurisdiction (UAGPPJA) Yes
State Policy Permitting Delegation of 16 Nursing Tasks No
CARE Act*

Yes

* The Caregiver Advise, Record, Enable (CARE) Act enables family caregivers to provide safe and effective home care to older adults. In particular, it supports family caregivers when their loved ones are admitted to the hospital, and helps them to learn how to safely provide care at home once their loved ones are discharged from a medical facility.

While the finer points of the CARE Act vary from state to state, it contains three central provisions in every version nationwide:

  1. The name of the family caregiver is recorded when a loved one is admitted into a hospital or rehabilitation facility.
  2. The family caregiver is notified if the loved one is to be discharged to another facility or back home.
  3. The hospital or rehabilitation facility must provide an explanation and live instruction of the medical tasks—such as medication management, injections, wound care, and transfers—that the family caregiver will perform at home.

A government program that assists eligible individuals to remain at home by helping pay for home and community based services, including:
- In home care
- Adult day care
- Temporary stay at licensed facilities
- Caregiver camps

Care Recipient Eligibility:

Multiple requirements:
- Must be a resident of New Jersey
- Adults age 65 and older or 18 and older with disability
- Low income

*Depending on income, services are offered on a share of cost basis

Caregiver Eligibility:

Anyone caring for someone who meets recipient eligibility criteria

Toll Free Nationwide: (877) 222-3737

Services for Care Recipients Living at Home

Formerly known as the Global Options for Long-Term Care (GO) Medicaid Waiver Program, it is now known as MLTSS, and offers a new way to help individuals live in the community for as long as possible with services and supports.

Care Recipient Eligibility:

Multiple requirements:
- Must be a New Jersey resident
- Nursing home resident
- Low income (Medicaid eligible)

Caregiver Eligibility:

___

(877) 222-3737

Offers financial assistance to eligible persons to use for adult day care services.

Care Recipient Eligibility:

Multiple requirements:
- Alzheimer's disease or related dementia diagnosis
- Low income
- Reside in the community
- In need of supervision

Caregiver Eligibility:

___

(609) 943-3475
(609) 943-4985

Toll Free:
(800) 792-8820
(877) 222-3737

This program offers counselors (Registered Nurses and Social Workers) to assist residents in nursing facilities and hospital patients understand various home and community-based services by providing information about in-home services, housing alternatives, and community programs.

Care Recipient Eligibility:

Adult nursing home residents and hospital patients

Caregiver Eligibility:

____

(877) 856-0877
609-943-4978

Offers a variety of in-home services and supports to enable individuals at risk of placement in a nursing facility to remain in the community and delay /prevent institutionalization.

Care Recipient Eligibility:

Multiple requirements:
- Adults with disabilities or 60 and older
- Low income (just above medicaid financial eligibility)
- Require nursing level of care

*Depending on income, services are offered on a share of cost basis

Caregiver Eligibility:

___

1-800-792-8820

Assists eligible persons with excessive medical bills to receive medical care and services.

Care Recipient Eligibility:

Multiple requirements:
- Adults with disabilities or age 65 and older
- Low income (But not eligible for Medicaid)

Caregiver Eligibility:

___

(800) 792-9745

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Adults age 60 and older

Caregiver Eligibility:

Anyone

To be connected to your local AAA, call Toll Free Nationwide:
(877) 222-3737

This state department helps residents of New Jersey with disabilities to obtain and retain employment. It provides information and referral services for independent living.

Care Recipient Eligibility:

Individuals with any type of disability

Caregiver Eligibility:

___

(609) 659-9045
TTY:
(609) 292-2919

Provides information about end-of-life care. It's website includes a membership directory which allows the user to search for local hospice service providers.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(908) 233-0060

A network of nonprofit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
- Information and referral service
- Independent living skills training
- Peer counseling
- Individual and systems change advocacy
- Life transition service

Care Recipient Eligibility:

New Jersey residents with disabilities. Eligibility varies by program.

Caregiver Eligibility:

____

To find your local Independent Living Center, call: (609) 581-4500 or
(609) 581-4555 (TTY)

The PASP provides routine, non-medical assistance to adults with disabilities who are employed, involved in community volunteer work, or attending school.

Personal assistants help with tasks such as: light house keeping, bathing, dressing, preparing meals, shopping, driving or using public transportation. The total number of hours a person can receive is determined based on individual need, up to a maximum of 40 hrs/week. A distinction between the PASP and other personal assistance programs in NJ is that the PASP requires self direction; meaning the individual with the disability must direct his/her own services.

Care Recipient Eligibility:

Applicants must:

- reside in New Jersey
- have a permanent physical disability
- be between the ages 18 and 70 years old
- live in the community
- be capable of directing and supervising their own services
- be employed, preparing for employment, in school, or actively volunteering in the community

Caregiver Eligibility:

___

(888) 285-3036

Rewarding Work, a nonprofit company, provides a web-based resource to help older adults and people with disabilities hire personal care assistants (PCAs) and direct care workers. Also provides a free resource for workers who are interested to find jobs as PCAs. Rewarding Work presently operates in Connecticut, Massachusetts, Rhode Island, New Jersey and Vermont.

Care Recipient Eligibility:

Older adults and adults with disabilities

Caregiver Eligibility:

___

(866) 211 9675

A government program that assists eligible individuals to remain at home by helping pay for home and community based services, including:
- In home care
- Adult day care
- Temporary stay at licensed facilities
- Caregiver camps

Care Recipient Eligibility:

Multiple requirements:
- Must be a resident of New Jersey
- Adults age 65 and older or 18 and older with disability
- Low income

*Depending on income, services are offered on a share of cost basis

Caregiver Eligibility:

Anyone caring for someone who meets recipient eligibility criteria

Toll Free Nationwide: (877) 222-3737

Resources on Living Arrangements for Care Recipients

Provides online directories of long term care facilities, including nursing homes. Also provides information on licensure for hospitals and other care facilities licensed by the Department of Health and Senior Services.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(609) 633-8980
or Toll Free Nationwide: (877) 222-3737

This program offers counselors (Registered Nurses and Social Workers) to assist residents in nursing facilities and hospital patients understand various home and community-based services by providing information about in-home services, housing alternatives, and community programs.

Care Recipient Eligibility:

Adult nursing home residents and hospital patients

Caregiver Eligibility:

____

(877) 856-0877
609-943-4978

Provides online directories of:
- Nursing facilities
- Assisted living facilities
- Resident care facilities

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(609) 890-8700

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Adults age 60 and older

Caregiver Eligibility:

Anyone

To be connected to your local AAA, call Toll Free Nationwide:
(877) 222-3737

Provides information about end-of-life care. It's website includes a membership directory which allows the user to search for local hospice service providers.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(908) 233-0060

Government Health & Disability Programs

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance, Medicaid and other health care issues. Community education and individual counseling are available.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Toll Free Statewide: (888) 576-5529

Outside NJ: (732) 572-9100

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility:

Must be low-income - based on specific government criteria

Caregiver Eligibility:

___

(800) 356-1561

Assists eligible persons with excessive medical bills to receive medical care and services.

Care Recipient Eligibility:

Multiple requirements:
- Adults with disabilities or age 65 and older
- Low income (But not eligible for Medicaid)

Caregiver Eligibility:

___

(800) 792-9745

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Adults age 60 and older

Caregiver Eligibility:

Anyone

To be connected to your local AAA, call Toll Free Nationwide:
(877) 222-3737

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans' benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility:

Veterans who are residents of New Jersey

Caregiver Eligibility:

Family members of a veteran

(877) 222-8387

Program helps pay for parts of Medicare for qualifying Medicare beneficiaries.

Care Recipient Eligibility:

Must be low-income based on specific government criteria

Caregiver Eligibility:

___

(800) 792 9745

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

___

(800) 792-8820

Legal Help & Advocacy

Provides legal assistance to low income individuals in the areas of: Immigration and family law. 

(856) 966-8896

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance, Medicaid and other health care issues. Community education and individual counseling are available.

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

Toll Free Statewide: (888) 576-5529

Outside NJ: (732) 572-9100

Non - profit organization provides free legal assistance to low-income people . Services include:
- Free legal services
- Community education
- Information and referral
- Advocacy

Care Recipient Eligibility:

Low income residents of New Jersey

Caregiver Eligibility:

Anyone

Statewide Legal Hotline: (888) 576-5529

Adult Protective Services assist vulnerable and elder adults to stop and prevent abuse, neglect, or exploitation. Anyone can make a report about suspected abuse to the Hotline.

Care Recipient Eligibility:

Adults age 18 and older

Caregiver Eligibility:

Anyone

To make a report, contact your county office.

AAAs offer aging services, including:
- Information and assistance
- Care management
- Nutrition services (i.e., Meals on Wheels)
- Legal assistance
- Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility:

Adults age 60 and older

Caregiver Eligibility:

Anyone

To be connected to your local AAA, call Toll Free Nationwide:
(877) 222-3737

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans' benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility:

Veterans who are residents of New Jersey

Caregiver Eligibility:

Family members of a veteran

(877) 222-8387

Government program advocates for the legal rights of people with disabilities and mental illness. Services include:
- Information and referral
- Legal advocacy
- Education

Care Recipient Eligibility:

Adults with any type of disability

Caregiver Eligibility:

Anyone

Within New Jersey, call: (800) 922-7233
TTY: (609) 633-7106

Outside New Jersey, call: (609) 292-9742

The New Jersey Office of the Ombudsman for the Institutionalized Elderly is part of a national resident-focused advocacy program that seeks to protect the health, safety, welfare, and civil and human rights of older individuals in institutions. Staff and volunteers work with individual residents to help them address challenges they face.

Care Recipient Eligibility:

Resident in a long-term care facility

Caregiver Eligibility:

Anyone

To File a Complaint: (877) 582-6995

For more information call (609) 826-5090 or 1-877-582-6995

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility:

Medicare beneficiary

Caregiver Eligibility:

___

(800) 792-8820

Disease-Specific Organizations

To speak with someone about Huntington's Disease or the Clinic, contact the program Coordinator, Christine Hogan, LCSW, at (732) 235-5993.

For specific questions regarding pre-symptomatic testing and/or prenatal testing, contact Michael K. McCormack, PhD., Director, at (732) 235-5992

The Greater New Jersey Chapter provides educational programs and support groups for people living with Alzheimer's disease and other forms of dementia, caregivers, and health care professionals. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(800) 272-3900

The APDA New Jersey Chapter provides support groups, educational, and training programs for adults living with Parkinson's disease and their loved ones. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(732) 846-0131

Caregivers, adults who have suffered a stroke, and medical professionals are provided a wide range of services such as social, educational, and emotional support. 

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

(609) 208-0020

The Brain Injury Alliance New Jersey provides a wide range of services for adults living with a brain injury, caregivers, and medical professionals.

Programs offered

-Support groups

-Camp

-Educational programs 

-Training programs

-Social events

Care Recipient Eligibility:

Anyone

Caregiver Eligibility:

Anyone

1(800) 669-4323

Caregiver Compensation

New Jersey's Assistance for Community Caregiving (JACC) program is a non-Medicaid program that allows for family members and friends, including spouses, to be compensated for personal care services. Other services may include:

  • Respite Care
  • Homemaker Services
  • Home Delivered Meals
  • Adult Day Care
  • Medical Equipment
  • Transportation
  • Personal Emergency Response System
  • Home Modifications
Care Recipient Eligibility:

-Must be a legal resident of New Jersey

-60+ years of age

-Resides in their own home or home of relative or friend

-Require nursing facility level of care 

-Low income ( but NOT eligible for Medicaid)

Caregiver Eligibility:

Anyone

Aging and Disability Resource Connection (ADRC) toll free: 1-877-222-3737 

New Jersey's Personal Preference Program (PPP) is a Medicaid program that provides financial assistance to assist seniors and people with disabilities. The program allows for the care recipient to choose the services they want, hire their own personal care provider (including relatives and friends), create their own schedule, and maintain control over their care plan. PPP may also covers costs for medical equipment and home modifications. 

Care Recipient Eligibility:

-Must be a resident of New Jersey

-Must be NJ FamilyCare eligible
-Must be in need of personal care services for at least six months

Caregiver Eligibility:

Anyone

Division of Disability Services: 888-285-3036